One of the more pronounced effects, for me, of CLL and the chemo I did is a lack of stamina. I am essentially home bound. So what to do? I'm always looking for ideas, ways to spend time constructively. If you find yourself with time on your hands what do YOU do to keep from being bored 😴? Here's your chance to be share with others. 🙂
My wife makes angels using beads and we make 3d stars using bamboo.
I find doing anything creative can really fill up my day. I play quite a few instruments (none of them really well) so I like to make arrangements of familiar songs, record them on various instruments, & mix the tracks into a complete arrangement. Chemo screwed up my hand coordination so I haven't done water colors lately but, as the coordination begins to come back, I'll be starting that up again soon. I've also been writing an autobiography for my family archives. It is great to relive some of the high points of your life and makes me very appreciative of the blessings I've been given. Any one of these things gets me into "the zone" where time seems to fly by.
That depends on how you mean by house bound? Does you mean you can't get out? Invest in a mobility scooter to try and get out and about,beats the boredom of looking at 4 walls, find something to make, wood crafting, knitting, journalling, word searches, you can get these on line to.
Motivation and stamina is what I lack, I struggle sometimes to walk around the bungalow I have but I have to make myself do something as no one else will do it for me,my kids just create more work for me. So I have to do, I have a nap in the afternoons or late afternoon to recharge my somewhat battery. I have a mobility scooter and an electric wheelchair to get me out of the house but awaiting for a bigger mobility scooter to come so I can go longer distances with it. I hate being inside, hate looking at the same 4 walls day in day out. I read alot on the Web but it sometimes fatigues me. I'd rather be doing than just sitting doing nothing and wasting my life away doing nothing.
Life's for living as we never know how long we have left on this plain. Life is for learning to, learn new skills, just try do something each day.
Most of the days I have to push through the pain and fatigue when my body just wants to give up.
It's like yesterday had a nap, dog kicked me out of bed as he wanted feeding, my daughter had started to pain our bathroom, it was like giving a 5 year old a paint brush and a tin of paint,by the end of it paint got everywhere, ceiling and floor. She had no idea how to clean it all up, had to get a scrubbing brush to clean the paint of the floor, and now I have to sand down the wood work to get the paint off there to.
A nightmare to say the least. Today I've just got back from walking my dog and now in need of a nap. No doubt there's going to be something that I'm going to have to do apart from re sorting out the bathroom as my daughter has decided that she now wants to mow the lawn. 🤦♀️. More work for me to do with clearing the grass that comes inside.
I started joining different groups on Facebook. Groups that either pertain to things I like or things I want to learn about. This may sound like nerd-city but I’m fascinated by the scope of the universe, what’s in it, what we know, what we don’t know, what we think we know, etc. So I joined some groups that have some REALLY intelligent and knowledgeable people and between the FB groups and me researching stuff on the web, I can get lost for hours AND it is a great workout for the brain AND I’m learning something really interesting and worthwhile.
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