Connect with others who understand.

sign up Log in
Resources
About MyLymphomaTeam
Powered By

Lymphoma Awareness: How To Get Involved

Written by Anika Brahmbhatt
Posted on September 1, 2021

If you’re living with lymphoma, you’re already aware of the impact the condition can have on your life — but chances are strong that other people in your orbit don’t know as much as they could about the disease. That’s why the U.S. Congress established September as Blood Cancer Awareness Month in 2010.

It can be hard when your friends and family don’t know what you’re going through. It can also feel difficult to say no to loved ones who don’t understand your situation, because you might worry about how your relationships will be affected.

Raising awareness about lymphoma is important so that your friends, family, and acquaintances can learn how to best show their support.

“Don't be afraid, and always [ask] questions,” advised one MyLymphomaTeam member. “Knowledge is necessary to continue treatment because of constant changes.”

Start by Raising Your Own Awareness

Before you can create public awareness by sharing information with others, it’s a good idea to understand the specifics about lymphoma. Learn more about lymphoma’s causes, signs and symptoms, and treatments.

Lymphoma is a type of blood cancer that occurs when certain types of white blood cells called lymphocytes develop abnormally and crowd out healthy cells. Lymphoma is split into two main categories: Hodgkin lymphoma and non-Hodgkin lymphoma.

Lymphoma starts in the lymph nodes and vessels of the lymphatic system. When lymphocytes develop genetic mutations, the abnormal cells can grow faster and live longer than healthy cells. Like other cancers, lymphoma is caused by genetic mutations that allow cells to divide and grow in a disorganized way. Mutations can be inherited or acquired. Acquired mutations are caused by normal aging, as well as exposure to carcinogens, such as radiation, certain chemicals, smoking, and some viruses.

Share Awareness Resources

Once you’re armed with information about lymphoma, you can share it with others. The fastest and least expensive way for this kind of advocacy is through social media. You can post information about lymphoma, share details about the condition, and join communities of other people who are also working to raise awareness about lymphoma.

Check out the Leukemia & Lymphoma Society’s resources you can share to help people communicate effectively with friends, family, and even doctors. You can also follow the organization on Twitter, where it shares topical information for people with lymphoma.

To ensure your messages on social media reach as many people as possible, consider using an appropriate lymphoma-related hashtag, like #FightBloodCancer. This way, your posts will be seen by more people who have the same interests, and they’re more likely to share and comment.

Social media helps raise awareness for the condition, and it also allows other people with lymphoma to realize they aren’t alone. Joining a social network for people with lymphoma, such as MyLymphomaTeam, can also help you connect with others.

Participate in Awareness Activities

Another way to raise awareness about lymphoma is to participate in an activity dedicated to the cause. You can walk or run for lymphoma, play bingo, host a silent auction or fundraiser, or even create a unique event that works for your interests. You can help other people understand more about lymphoma while having fun and raising money for the cause.

If you have money to spare, consider donating to organizations like the Leukemia & Lymphoma Society, which allows for further research into ways to better treat and manage the condition.

In addition, remember to engage in self-care. It is emotionally taxing to educate others about your lived experiences, so know your limits and accept when to put your mental well-being first.

Connect With Others Who Understand

On MyLymphomaTeam, more than 8,000 people living with lymphoma come together to ask questions, give advice, and share their stories with others who understand life with the condition.

Share your lymphoma journey in the comments below, or start a conversation by posting on your Activities page.

Posted on September 1, 2021

A MyLymphomaTeam Member

Even into my 2nd year I am still in the Wait and watch. I find this very trying. It seems there should be something I can do

posted January 31, 2022
All updates must be accompanied by text or a picture.

We'd love to hear from you! Please share your name and email to post and read comments.

You'll also get the latest articles directly to your inbox.

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
All updates must be accompanied by text or a picture.

Subscribe now to ask your question, get answers, and stay up to date on the latest articles.

Get updates directly to your inbox.

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
Anika Brahmbhatt is an undergraduate student at Boston University, where she is pursuing a dual degree in media science and psychology. Learn more about her here.

Related Articles

No one knows what it’s like to have cancer unless they’ve actually been through it. Lou Lanza is ...

5 Suggestions To Ease Your Cancer Journey From a Lymphoma Advocate

No one knows what it’s like to have cancer unless they’ve actually been through it. Lou Lanza is ...
If you daydream about dessert or yearn for something sweet after every meal, you’re not alone. Lo...

4 Things To Know About Lymphoma and Sugar Cravings

If you daydream about dessert or yearn for something sweet after every meal, you’re not alone. Lo...
Flow cytometry testing is one way your lymphoma care team may diagnose and monitor your condition...

How Flow Cytometry Is Used To Diagnose and Monitor Lymphoma

Flow cytometry testing is one way your lymphoma care team may diagnose and monitor your condition...
Scientists have linked many chemicals to an increased risk of developing lymphoma. Although these...

6 Chemicals That Raise Lymphoma Risk: Paint Thinners, Pesticides, and More

Scientists have linked many chemicals to an increased risk of developing lymphoma. Although these...
This is a short guided meditation by Dr. Christiane Wolf on self-kindness, which gives you more s...

Self-Kindness When Struggling: 6-Minute Guided Meditation

This is a short guided meditation by Dr. Christiane Wolf on self-kindness, which gives you more s...
You may choose to make certain lifestyle changes when you receive a lymphoma diagnosis to help yo...

4 Things To Know About Alcohol and Lymphoma

You may choose to make certain lifestyle changes when you receive a lymphoma diagnosis to help yo...

Recent Articles

MyHealthTeam does not provide health services, and if you need help, we’d strongly encourage you ...

Crisis Resources

MyHealthTeam does not provide health services, and if you need help, we’d strongly encourage you ...
You are the key opinion leader of your disease — this was the sentiment shared by speakers in a p...

6 Ways To Advocate for Your Lymphoma Care According to Health Care Professionals

You are the key opinion leader of your disease — this was the sentiment shared by speakers in a p...
There are many risk factors, both inherited and environmental, believed to increase one’s risk of...

Is Diffuse Large B-Cell Lymphoma Inherited? Genetics and 8 Other Risk Factors

There are many risk factors, both inherited and environmental, believed to increase one’s risk of...
When treatment for diffuse large B-cell lymphoma (DLBCL) successfully kills all of your detectabl...

Remission and Complete Response in DLBCL: How Long It Lasts and More

When treatment for diffuse large B-cell lymphoma (DLBCL) successfully kills all of your detectabl...
Roughly 50 percent to 60 percent of people relapse within the first two years of achieving remiss...

DLBCL Relapse Chances and Treatment Options

Roughly 50 percent to 60 percent of people relapse within the first two years of achieving remiss...
Diffuse large B-cell lymphoma (DLBCL) is staged based on which lymph nodes and organs are involve...

Early vs. Advanced DLBCL: How Are They Treated Differently?

Diffuse large B-cell lymphoma (DLBCL) is staged based on which lymph nodes and organs are involve...
MyLymphomaTeam My lymphoma Team

Thank you for subscribing!

Become a member to get even more:

sign up for free

close