Thank you Vonnie

Yes! I had 4 injections of methotrexate into my , cns spine as preventative, no sign of cancer.The lumbar puncture are not fun. But bearable. My oncologist had me lay flat for 2 hours after the injections, they originally said one hour, he said 2. And I never had a headache and was warned that could happen. Vonnie

Aik hi there, I’m sure it’s a little different but still applicable. I’m doing all right. How’s it going for you?
Peace and healing wishes
Deb

Hey Deb,

I don’t know if OMMAYA RESERVOIRS infusion is the same, but from my installation of it until my last infusion which actually was toddy at 9am, I can honestly say the most ever was discomfort when the doctor insert the “butterfly” needle into my skin. And the entire process is fast. Did it I think 4 times so far. How are you doing!?

Big Bear Hugz,
Aik

In addition to the R-EPOCH treatment I received in 2020 for double expressor DLBC lymphoma, I received 3 methotrexate injections to prevent the lymphoma from going to my brain. The injections were given usually on the 3rd day of my hospital stay. The injections were given by a NP or PA (I don’t actually remember which) in my hospital room, with me bent over while sitting on the side of the bed. I drank plenty of water on the day of the injection, especially after the injection. I also made sure to shower before the injection since I could not get the area of my back wet until the next day. A local anaesthesia was given in my lower spine prior to the injection, but the injection was still a bit uncomfortable, but not necessarily painful. Immediately after the injection, I laid on my back for at least an hour.

The injection was apparently successful since I did not have any lymphoma in my brain. Although the cause was debated and never actually determined, I did have occasional headaches for a couple of months after all of my treatment was concluded. One idea was that I had a spinal leak as a result of the methotrexate injections. One doctor thought this was not likely since the injections were in my lower spine and not closer to my head and neck area. He did, however, administer an epidural blood patch - an injection of my own blood in my lower spine to “patch” the possible leak. Whether or not this actually fixed the problem is not known for sure, but my headaches slowly went a way over the next few weeks.

I hope and pray the best for you! If you have any other questions, please ask.