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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLymphomaTeam Member asked a question 💭
Surprise, AZ

I had 4 each were 3/weeks apart , I had Large BCell NHL and aggressive had 5 radiation on 7 c in neck , two bone marrow biopsy’s , and then 6 RCHOP 3 weeks apart hit remission in July2022 . My oncologist at Barrows said where mine was if it came back bones or brain, I appreciated the honesty, 79 now and feeling great . Had ptscan in Dec 2021 still clear

February 6, 2023 (edited)
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Answer Summary

Members shared their experiences with spinal methotrexate infusions as a preventive treatment after lymphoma remission, with several... Read more

Members shared their experiences with spinal methotrexate infusions as a preventive treatment after lymphoma remission, with several describing the procedure as a lumbar puncture typically done in four rounds, three weeks apart, to prevent cancer from spreading to the brain or central nervous system. Many members offered practical advice, emphasizing the importance of lying flat for several hours after the procedure to avoid a spinal headache, and reassured those preparing for their first infusion that while the process can feel intimidating, it generally goes smoothly when performed by experienced medical teams. A recurring theme was gratitude for being in remission, mutual encouragement through prayers and well-wishes, and a shared sense of resilience in facing aggressive lymphomas with proactive, sometimes challenging, preventive measures.

A MyLymphomaTeam Member

Hi
Yes, I had 4 methotrexate injections as precautionary also into my spine. Since I'm stage iv he just wanted to do 4 of the 6 rchop treatments. It wasn't horrible, but I was really glad when it was over.
Vonnie

February 6, 2023
A MyLymphomaTeam Member

I am going to the hospital next week for my first dose of methotrexate. It sounds scary but I am going to a hospital where they do the infusion regularly. Good luck to all!

February 24, 2023
A MyLymphomaTeam Member

Because I have lymphoma in the CNS, I have had a few methotrexate injections. It is a lumbar puncture done in the hospital by an interventional radiologist. I just had one yesterday and it went fine. Just make sure you lie down flat for several hours to avoid the nasty spinal headache. I need to have 3 more lumbar punctures. They take out spinal fluid to see if there are cancer cells in the fluid. Then the methotrexate is injected. All of my lumbar punctures have gone well. Good luck.
Mary

June 21, 2023
A MyLymphomaTeam Member

I have never had that but I’m currently taking an injection in my stomach once a week of low dose Methotrexate. I had LBC of the Central Nervous System in my brain and I currently am in remission as well. Saying prayers for you! Blessings~

February 6, 2023
A MyLymphomaTeam Member

Never heard of it but I’m happy for you. Remission is great I’m sure, I think I’m close to being there. God bless and be safe
Anna

February 6, 2023

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