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Any Advice Helps, Love The Group
A MyLymphomaTeam Member asked a question 💭
posted July 29, 2023
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A MyLymphomaTeam Member

I'm pulling for you buddy. I'm experiencing side effects from treatments and followup treatments to support my immune system - it is never ending.
Would you be so kind as to update your story and indicate specifically which lymphoma you are dealing with - they are so different in many ways. Mine is Waldenstrom's (WM) - somewhat uncommon.

Hand in their, Joe

posted December 20, 2023
A MyLymphomaTeam Member

Like a dizziness out of nowhere Like vertigo.one minute fine then missing a step or just walking off the side walk for no reason....and so much more

posted December 12, 2023
A MyLymphomaTeam Member

Jeff - sorry you are struggling - I am single, 78 yrs old, have a 'significant other' with whom I don't live - see her several times a week. She is trying to be supportive but doesn't 'get it' pushing me to get back to our normal activities. We've done a few things since I began treatment act 18 mrs ago - but effects of treatments -constipation,diarrhea, tiredness have slowed me down a lot. I recently read about CRF, Cancer Related Fatigue. It's a thing. I've been trying to explain for a year and a half how I feel -and reading about CRF allows me to understand and explain. If you like, check it out. Good luck to you, Joe

posted December 10, 2023
A MyLymphomaTeam Member

Something is very tiny, they won't say, maybe scar tissue but another blood draw on the 31st

posted July 30, 2023

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