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Is Anybody Taking Brukinsa?
A MyLymphomaTeam Member asked a question 💭

Just wondering if any oncologist has prescribed a BTK blocker for NHL?

posted August 5, 2023
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A MyLymphomaTeam Member

I was diagnosed with WM in 2018. I did 6 courses of Bendamustine and Rituximab. It worked for about 30 months.

I have been taking Brukinsa for about 2 years. After my first 10 months on the drug my blood calcium spiked to a very high level and I took a 90 day reprieve from the Brukinsa.

I am back on the pills for about 6 months, and I am feeling very good.

posted August 13, 2023
A MyLymphomaTeam Member

Hi Matt
Thank you for your response. Good to hear that treatment is working well for you.

posted August 13, 2023
A MyLymphomaTeam Member

Yes...I been dealing with itching and bites. I thirsty and drinking alot of water and sometimes sleepy.

posted September 3, 2023
A MyLymphomaTeam Member
posted September 11, 2023
A MyLymphomaTeam Member

Oncology tied me that NHL is not curable but the meds just slow progression . He should report his shortness of breath to the oncologist.

posted August 6, 2023

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