Is There Any In The Group That Has SMZL, Splenic Marginal Zone Non Hodgkin's Lymphoma? | MyLymphomaTeam

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Is There Any In The Group That Has SMZL, Splenic Marginal Zone Non Hodgkin's Lymphoma?
A MyLymphomaTeam Member asked a question 💭

I understand it's rare. I have a group on Facebook but looking for others with SMZL.

posted August 25, 2023
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A MyLymphomaTeam Member

I would also join the SMZL Facebook group. I have gotten such great advice and everyone posts if they have a symptom, question, etc.

posted August 29, 2023
A MyLymphomaTeam Member

I would love to be I your group
Let me know. I will email you

posted November 5, 2023
A MyLymphomaTeam Member

Is there a way to pm my email address?

posted November 7, 2023
A MyLymphomaTeam Member

Hi Beverly, I have experienced mostly mild symptoms from Splenic Marginal Zone Lymphoma since I was 49 & I'm 70 now! My oncologist treated me with Rituxan infusions, a couple of years ago. Everything has gotten better for me! Even my spleen shrunk back!! Seems like I've been very fortunate & I hope it continues forever. That's my plan anyway !!!!!

posted September 11, 2023
A MyLymphomaTeam Member

I have had Splenic Marginal Zone Lymphoma since I was 49 yrs old & I'm 70 now! Diagnosed 2002 & approximately 2 years ago I was treated with Rituximab infusions & my spleen shrunk plus my numbers have been looking good ! Not too bad for now so best of luck & health to you !!!!!

posted September 3, 2023

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