I understand it's rare. I have a group on Facebook but looking for others with SMZL.
I would also join the SMZL Facebook group. I have gotten such great advice and everyone posts if they have a symptom, question, etc.
I would love to be I your group
Let me know. I will email you
Is there a way to pm my email address?
Hi Beverly, I have experienced mostly mild symptoms from Splenic Marginal Zone Lymphoma since I was 49 & I'm 70 now! My oncologist treated me with Rituxan infusions, a couple of years ago. Everything has gotten better for me! Even my spleen shrunk back!! Seems like I've been very fortunate & I hope it continues forever. That's my plan anyway !!!!!
I have had Splenic Marginal Zone Lymphoma since I was 49 yrs old & I'm 70 now! Diagnosed 2002 & approximately 2 years ago I was treated with Rituximab infusions & my spleen shrunk plus my numbers have been looking good ! Not too bad for now so best of luck & health to you !!!!!