Hi, Is Anyone Here Diagnosed With Classic Hodgkin Lymphoma Suffering Severe Bone Pain? | MyLymphomaTeam

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Hi, Is Anyone Here Diagnosed With Classic Hodgkin Lymphoma Suffering Severe Bone Pain?
A MyLymphomaTeam Member asked a question 💭
posted November 11, 2023
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A MyLymphomaTeam Member

I heard that CLL/SLL can mutate into multiple myloma which is extremely painful in bones. I hope this is not the case for you. I find the oncologists dismisive attitudes to my aches and pains and fears completely inappropriate, I found a Naturopathic oncologist which has been an improvement. She is also an MD and takes medicare!

posted January 20
A MyLymphomaTeam Member
posted January 21
A MyLymphomaTeam Member

There's articles here that do describe joint and bone pain with lymphoma. My bone marrow aspiration showed lymphoma in my marrow, so stage 4. I have plenty of aching joints, and the long bones of my right leg and sometimes left too. These ache intermittently. Sometimes I stagger as I walk. I should have pressed for answers but my dr was dismissive, Just saying yes you are stage 4. Going back in a month for scans and labs, hope to get some answers on it all. Thank you for sharing.

posted January 9
A MyLymphomaTeam Member

What are your physician's thoughts on it? Mine believes that lymphoma has not much to do with bone pain.

posted November 12, 2023
A MyLymphomaTeam Member

YES ON AND OFF

posted November 11, 2023

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