Answer Summary
Members with follicular non-Hodgkin lymphoma shared overwhelmingly positive experiences with bendamustine and rituximab treatment, with many... Read more
Very happy for you- 6 cycles is a lot but Petzscan result makes it worthwhile.
Well done
BrendaShaffner, Thank you for reaching out. I am glad I have my port, I didn't even feel the pinch when neddle goes into my port. I feel blessed went through the first chemo treatment easily, hoping and pray the rest the cycles will not be too difficut either. One day at a time, that's all I can ask.
I am doing good this week and hope the same for you.
Wish you a peaceful and relaxing Memorial weekend. SueT
Have had NHL follicular for 5 yrs. Did rituxan and combos all this time. Tried
Bendamustine with terrible side effects. Ended up in hospital and only continue Rituxan. No problems with that. Continue every 2 months and not counting being tired, have occasionally rashes and joint pain, I do well. Best wishes to you!
I was diagnosed bout five years ago with it. I did not do treatment, as I have RA & didn't want flares. I did however started cleansing my system with curcumin, gym, stopped all products like antiperspirants etc. Sauna & went into remission..no ports for me. I do have days where I retain fluid but I'm back to cleansing due to new tumors. Good luck
I was diagnosed with non hodgkins lymphoma earlier this year after hard lumps in my groin were diagnosed by PetScan.
First chemo at beginning of April- targeted therapy by injection for 2 weeks at local clinic.
Next chemo due on May 9 then four more at 4 week intervals.
No side effects apart from being tired- try to do a little gardening very early in the morning before the heat- 40 degree celsius day and 28 night where I live- Thailand ( Australian nationality)
Good luck