Oh boy! I am newly transformed, diagnosed last month. I am starting RCHOP next week. Hoping for complete remission. May I ask what your age is?

Similar situation. Abs. Neutrophils drop to 0.0 or 0.1 after a few weeks and my HCT drop to about 30. Then go for my Neulasta and it pushes the bone marrow to work harder. Well, this causes bone pain, like when you have the flu. I starts about 3 days after the injection and lasts for 3-5 days. It sucks but I consider the alternatives. History - Diag 9/18 probable follicular which converted to DBCL. Got RCHOP, radiation, failed, more chemo, BMT, failed, Radiation Chemo more RT. Then CAR-T 6/23. It has been 2 years since CAR-T. Still not much of an appetite, eating smaller portions, losing wt. My REAL question is, How long can the Neulasta work? My MD agrees (finally) that my bone marrow will not recover. So, now I have choices, go to infusion clinic every few weeks (pentamidine, Immunoglobulin) get my stuff, totally covered by Medicare, do my own shots which must be done daily and refrigerated if traveling and not sure if it is covered the same as at the clinic. I base much of my life on where I am in my cycle. Stay away from large crowds etc. I am thankful to be here. Thank you for reading.

I frequently get low WBC due to neutropenia (neutrophils being low). They get down to 0.5. And, I go on prefligastrim injections for 3 days and it sends it sky high - for a few weeks till they gradually come down. My bone marrow is still really ‘labile’ after my auto stem cell transplant 70 days ago.