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Hi JMS. I was initially diagnosed with Waldenstrom's macroglobulinemia stage 3B and after RCVP I had a good partial response. However just a few months later, it transformed to DLBCL. Unfortunately I wasn't strong enough to have a stem cell transplant. After R-CHOP I had a complete response, but yet again, it returned a few months later in my brain. So diagnosed with Secondary CNS DLBCL.
After MATRIX and whole brain radiotherapy which ended a few weeks ago, I discovered more lumps and I'm waiting for the results of a recent biopsy.
It seems never ending, and I'm struggling to recover from the effects of all these treatments which I've had over the course of two years.
I so hope you have a good response to your treatment.
Sending you a warm hug and positive vibes. Dawn.
I am sorry to hear of all your difficulties and hope and pray that they will find a solution to your problems. My mum used to say “it never rains but it pours”
Yes, it is possible to experience multiple relapses of DLBCL after achieving remission. Research shows that about one-third of people who achieve complete response after initial R-CHOP treatment will relapse within two years. Of those who relapse, about 44% can achieve a second remission with additional treatment.
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