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A MyLymphomaTeam Member asked a question 💭
lake tahoe, CA

I have a rare lymphoma and can only find one article about it. Mine is called Follicular Large Cell Lymphoma (FLCL) which is not the same thing as Follicular Lymphoma (FL). Need more information. Thanks.

October 17, 2025
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MyLymphomaTeam

While Follicular Large Cell Lymphoma (FLCL) is indeed distinct from standard Follicular Lymphoma (FL), it's important to understand that it falls within the broader category of non-Hodgkin lymphomas that affect B-cells. Like other lymphomas, it develops when B-cells (white blood cells that normally help fight infection) Show Full Answer

While Follicular Large Cell Lymphoma (FLCL) is indeed distinct from standard Follicular Lymphoma (FL), it's important to understand that it falls within the broader category of non-Hodgkin lymphomas that affect B-cells. Like other lymphomas, it develops when B-cells (white blood cells that normally help fight infection) become abnormal.

Your healthcare team will likely use imaging tests like CT scans or PET scans to determine the stage and spread of the lymphoma. They'll also typically perform a bone marrow biopsy to check if the cancer has reached the bone marrow. Since you're finding limited information specific to FLCL, it would be valuable to:

• Keep detailed notes of your specific symptoms and treatment responses
• Ask your oncologist about joining clinical trials specific to your type of lymphoma
• Request genetic testing of your lymphoma cells, as this can help guide treatment decisions
• Consider getting a second opinion from a lymphoma specialist at a major cancer center

Remember that while FLCL is rare, you're not alone in this journey. Your healthcare team can provide the most relevant information about your specific case and treatment options.

October 17, 2025

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