Powered By
Just got biopsy results with follicular lymphoma. Lymph nodes swollen in four areas above and below the diaphragm. I’m guessing labs and scan. Does everyone get a bone marrow biopsy?
I always took someone with me as a 2nd set of ears. You get A LOT of information at 1st, much of which you may not be able to take in or understand. Then I started writing down questions before every visit so I understood everything going on in my body, what terms meant, and the proposed treatment's side effects/prognosis. By the time I was in remission, I understood everything about my NHL. I did have 3 bone marrow biopsies, and I would think that is standard procedure. I never had bone marrow involvement, so if I would have had a transplant, they could my own...no risk of rejection or graft vs host disease. If it's not standard, it should be jic. It's not a comfortable procedure, but drugs definitely help! Also, never believe you have to be the strong one. If you suffer side effects from treatment or have to have a procedure, there are medications for both...demand them! You can be strong once in remission and gain back your health and life! I'm living proof at 68, 10+ years of complete remission!
Love and hugs,
Julie 🙏💜✝️
Isaiah 40:31
"We can do hard things!"---Brielle Bird (RIP)
Thank you!
What can you expect at your first oncology visit after a follicular lymphoma diagnosis?
Your guess about labs and scans is spot on. At your first visit, your oncologist will likely order several tests to understand the extent of your lymphoma and create your treatment plan.
Common tests include
* Blood tests (complete Show Full Answer
Join
Your Privacy Choices
