Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLymphomaTeam Member asked a question 💭
Bothell, WA

First infusion was Monday.

July 2
 · 
Reactions

Answer Summary

Members responded with encouragement to someone asking about Rituximab side effects after their first infusion, sharing a wide range of... Read more

Members responded with encouragement to someone asking about Rituximab side effects after their first infusion, sharing a wide range of personal experiences from various diagnoses including Follicular and Mantle Cell Lymphoma. Several members described manageable side effects like fatigue, mouth sores, digestive issues, and temporary breathing difficulties that were handled by slowing the infusion rate or adding antihistamines. A recurring theme was gratitude for tolerating the treatment well, with many members offering practical tips like lemon sherbets for metallic taste, and warm emotional support for those just starting their journey.

A MyLymphomaTeam Member

I had about three incidents over two years, having infusions every other month. The side effect was difficulty breathing and l was given oxygen and they slowed down the rate of the rituxan infusion. My face was always extremely red the first day after the infusion. I was terribly tired and slept most of the next 24 hours. Now that the infusions ended 7 months ago I am more fatigued. An ultrasound of my spleen is planned. I was told to go ahead with my cataract surgery.

July 5
A MyLymphomaTeam Member

I just finished my 7th of 12 Rituximab infusion and no significant side effects for which I praise and thank God for. My heart and prayers go out to those who aren't as fortunate.

July 8
A MyLymphomaTeam Member

I too are taking rituximab. Just had a session today. Other than being tired, I’m good. No adverse side effects

July 7 (edited)
A MyLymphomaTeam Member

My husband has had Rituximab together with another drug. He’s got mantle cell lymphoma. He had 6 rounds and although initially he had an allergic reaction, it was managed during infusion. He was/is tired, bruising stopped although it’s back again now. After a couple of months he had pain in his bones which I understand can be side effects of the chemotherapy. He’s on a different drug now. Your side effects, if you have any, could be so much different though so positive thoughts. Take care and rest lots. Xx

July 5
MyLymphomaTeam

First infusion — that's a big milestone! It's completely normal to be wondering what to expect. Rituximab is commonly used in lymphoma treatment, often as part of regimens like R-CHOP, and some people do experience side effects, especially around infusion time.

Some of the more common things to watch for include:

- Show Full Answer

First infusion — that's a big milestone! It's completely normal to be wondering what to expect. Rituximab is commonly used in lymphoma treatment, often as part of regimens like R-CHOP, and some people do experience side effects, especially around infusion time.

Some of the more common things to watch for include:

- Allergic-type reactions like itchy rash, swollen lips, throat, or face
- Fever and chills
- Trouble breathing
- Swollen limbs
- Digestive issues like nausea, diarrhea, or constipation
- Hair loss
- Numbness, tingling, or pain in limbs
- Weight changes Rituximab can also lower blood cell counts, which is worth keeping an eye on. Low white blood cells can raise infection risk, low red blood cells may cause tiredness or breathlessness, and low platelets can lead to easy bruising or bleeding.

The good news is that many side effects can be managed, and your care team can adjust things to help. Always let them know about anything that feels sudden or severe — don't try to tough it out alone!

Other MyLymphomaTeam members have shared their own experiences with rituximab infusions, so you're definitely not navigating this solo.

July 2

Related Questions

View All
A MyLymphomaTeam Member asked a question 💭
Bothell, WA