I am also being treated for SMZL however my schedule was a bit different I finished the initial 8 infusions three weeks apart and am on maintenance 4 weekly infusions every 6 months. Never really had any adverse reactions so I count myself lucky. Hopefully you will also have minimal issues. Good luck!
20 hours ago
In my case the first infusion caused fever and extreme tiredness. After that infusions went fine other than needing a nap after. I did the 4 weekly rituximab and after a year I started maintenance infusions every 8 weeks. Again only the first caused any concerns. Hope all goes well for you.
2 days ago
Rituximab is a commonly used treatment for SMZL, and while many people tolerate it well, there are side effects to be aware of. Here's a breakdown of what people may experience:
Common side effects
- Fever and chills
- Fatigue and general weakness
- Infusion reactions (low blood pressure, flushing)
- Low white blood cell Show Full Answer
Rituximab is a commonly used treatment for SMZL, and while many people tolerate it well, there are side effects to be aware of. Here's a breakdown of what people may experience:
Common side effects:
- Fever and chills
- Fatigue and general weakness
- Infusion reactions (low blood pressure, flushing)
- Low white blood cell counts, increasing infection risk
- Headaches and body aches
Rare but serious side effects:
- Severe infusion reactions (can be life-threatening)
- Tumor lysis syndrome (rapid breakdown of cancer cells causing metabolic issues)
- Kidney dysfunction
- Bowel obstruction or perforation
- Heart-related events It's really important to let your healthcare team know about any side effects you're experiencing, even the ones that seem minor. They can help manage symptoms and adjust your treatment if needed.
Also, while on Rituximab, live vaccines should be avoided as they can pose additional risks. If you're pregnant or planning to become pregnant, speak with your doctor, as the medication may affect an unborn baby.
5 days ago