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A MyLymphomaTeam Member asked a question 💭
Washington, PA

I was diagnosed with follicular lymphoma in 2009. I had treatment and maintenance til 2013. In 2021 a suspected cyst on my nose turned out to be cancer. I had surgery and radiation. In 2023, what I thought was eczema appeared on my upper right arm. My dermatologist decided to biopsy and it was cancer. My oncologist has never seen anything like this. At time it is itchy. After that biopsy they are saying it might be MALT and not follicular. It doesn't really look like eczema, it is… read more

August 30
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MyLymphomaTeam

What a journey you've been on since 2009 — your resilience is truly remarkable. To answer your question: yes, other MyLymphomaTeam members have experienced itchy, raised skin lesions that turned out to be lymphoma-related.

One member shared, "I have non-Hodgkin's lymphoma. Now I have these lesions that itch like crazy Show Full Answer

What a journey you've been on since 2009 — your resilience is truly remarkable. To answer your question: yes, other MyLymphomaTeam members have experienced itchy, raised skin lesions that turned out to be lymphoma-related.

One member shared, "I have non-Hodgkin's lymphoma. Now I have these lesions that itch like crazy popping up everywhere. They don't go away and itch a lot. Went to the dermatologist and he finally biopsied them."

Another member described frustration, saying, "This rash and itching is getting so frustrating. I can't sleep well." Itchy, raised skin lesions with lymphoma can take several forms:

- Patches — flat, smooth, or scaly
- Plaques — harder, thicker, and scaly
- Tumors — raised bumps or nodules

These can sometimes be mistaken for eczema, even by doctors. One member reported being misdiagnosed by nine different doctors before getting answers. Since your oncologist is considering both Rituxan and radiation, it's worth asking for a second opinion on the pathology, especially given the possible shift from follicular to MALT lymphoma. Getting an expert pathologist experienced specifically with lymphomas to review your biopsy results can make a real difference in confirming the exact diagnosis and best treatment path.

August 30

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