Hello
I was diagnosed with Waldenstrom
Christmas Eve 2021. The oncologist told me over the phone after I had a bone marrow biopsy. When he told me, I didn’t hear a word he said after that. I was home alone when he called. I told my husband when he got home.
I did not tell my family through the holidays, it was very hard to keep that secret but I didn’t want to ruin Christmas for my family.
I have had no treatment, I am on a watch & wait situation. I am fatigued all the time, have lost 25… read more
I have the same diagnosis 1/2022, via bone marrow biopsy in treatment currently with MD Anderson. I have been on targeted drugs and now on Valcade 4 x a month with infusion 1 x per month. Treatments… read more
Examples: Watch movies, listening to music, hobbies. If you have hobbies tell us about them. 😊
I have self managed my investments since retiring in 2011 - am doing a major restructure/simplification overhaul now. I sometimes spend hours watching finance programs when the markets are open and… read more
Dx over a decade ago lupus - asymptomatic- and symptomatic raynauds - dx 3.5 years ago smoldering multiple myeloma and 3 months ago marginal zone NHL.
I had local metastasis of my thyroid cancer about a decade ago. To treat this, I had a modified radical neck dissection. At the time, it was determined that I also had NHL. Most, but not all lymph nodes were removed. My thyroid endocrinologist performed ultrasound checks annually. In these checkups, he measured the size of the remaining lymph nodes to determine if I had any growth.
I continue to monitor the thyroid cancer using established blood tests. What is the standard of care for… read more
Scott3
Hi and welcome to the site. Everyone on here is so kind, supportive and helpful. I have/had DLBCL stage IV. I had treatments of RCHOP chemo. I've been in remission for 2 1/2 years. Mine… read more
Do you use things spiritual in dealing with your cancer?
If so what do you use? Prayer? Meditation? Certain books? Church, synagogue or mosque? Music? Poetry? I ask because I'm always looking for useful spiritual tools. Personally I use 12 step material and the book A Course In Miracles along with prayer. And there are certain organizations that I've found useful, that send out free booklets and magazines. But I'm always looking for useful things to add to my repertoire.
Totally agree
Anyone have an opinion about this medication, Good or bad. Any help would be greatly appreciated.
Thanks for the info. I have it my bone marrow, But my oncologist checked my lymph nodes, and said that she did not feel any swelling. Please keep me updated as to your progress. Some time I get so… read more
Has anyone gotten a urinary infection while on R-Chop?
No have been lucky not to get bladder infection but I did drink a lot of water.
Imbruvaca
Me too. Got to watch what I eat.