My son has Diffuse Large B Cell Non-Hodgkin Lymphoma, diagnosed in March 2020. He went through 6 rounds of chemo but then the Lymphoma came back in November 2020. He had a stem cell transplant in February 2021. We thought he was doing well, but in June it had metastasized to his brain. He has now done 3 rounds of MATRIX chemo and is going to have CAR T Cell transplant in a few weeks. Praying that this will finally put him in a remission. It has been a long, rough year. My prayers are with you and I wish you the best with your tests.

I have marginal zone transitioned into B cell lymphoma and it's located in the dura mater. That's the spongey cushioning between the brain and the skull. Have lots of headaches and am scheduled for 3rd round of chemo next week. After that there will be a PET scan to see if this treatment is working or not. Biggest complaints are fatigue and continued headaches, but hoping this too shall pass and life will return to what passes for normal come spring.

If you feel like you are doing great then you are doing great. Best of luck with your tests.

I was diagnosed with Primary Diffuse Large B Cell Non Hodgkin Lymphoma of the Brain in 2019. I did high dose chemotherapy for 5 1/2 months. I was in the hospital for 5 days on and 5 days off with IV chemotherapy. I have a very strong faith in Jesus and I too spend a lot of time in prayer. I am currently in remission. I have a lot of bone and joint pain along with headaches (they did brain surgery on me in 2019 when they found the tumor). I also have fatigue and low endurance. I am taking life one day at a time and being thankful for each moment…

My partner had Diffuse Large B Cell Non-Hodgkin Lymphoma of the brain, diagnosed in May of 2018 and is still doing fairly well but still suffers from neuropathy in her feet, severe edema in lower legs and unable to walk without a walker and some memory loss. She was injured at a local radiology clinic here in Santa Rosa, CA in Feb of 2020 during an MRI. It took her almost a year to recover and is permanently scarred as a result. The affiliated hospital could not be held responsible and lied about the event. I'm filled with rage every time I drive by this clinic and every day when I look at her leg.