June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
My check up yesterday, I knew would be with assistant, I met 1 time prior and tried not to make judgment. Yesterday I asked pointed questions! I couldn't get an answer!!!! Agh! I asked "what is the name of my leukemia?" She's scanning my chart online... ummm I don't know, it doesn't say. Wow I say. The initial blood work said CD5 small B cell leukemia. She then says "yeah, yeah it says that". Then I asked "Is that the name then?" She said "Um I don't know" I said OK then what's the name of… read more
Thank you
I have had no hodgkins lymphoma for over 9 months and receive chemotherapy every three weeks weeks.
So true Pat…Such good words of advice which I will take on board. Xxx
I don’t know yet. But after my recent investigation it was very fast that they wanted to see me again. With my other cancer (brain tumour) I get to see my oncologist on the same day after the MRI. I… read more
I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?
Thank you so much for all your replies. 🌻. Definitely God sent.🙏. Be blessed, be strong💐. Needed to read this, like now🤕. What a coincidence, am at Onco. Clinic waiting to be called, scheduling 8… read more
I had Hodgkin lymphoma I'm fine now😇
My oncology office made me go through chemo training before starting chemo. I was advised of all of the possible reactions.
If your interested they produce a great Lymphoma newseltter as well; https://cancerconnect.us19.list-manage.com/subs... C
I would like to know what are the signs and stages of lymphoma.
Thank you. That is very helpful!
I went to oncology and he gave me copy of biopsy. Does anybody know what it means when it says mature low grade B-cell lymphoma with CD5 co-expression , most consistent with small lymphocytic lymphoma/chronic lymphocytic leukemia
Wanda, I was originally diagnosed with what was called an indolent NHL. or lymphoplasmacitic lymphoma. One valuable resource I used to educate myself was the International Waldenstrom's… read more