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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Gone Through CAR T Cell Transplant?

Has Anyone Gone Through CAR T Cell Transplant?

My son has DLBCL and has had a stem cell transplant already but now the lymphoma has gone to his brain, secondary CNS. The doctors are saying that the CAR T Cell Transplant is an option for him.

posted about 1 year ago
A MyLymphomaTeam Member said:

I had Car-t treatment in August , 2022. No side effects and now back at home. I have non Hodgkins Lymphoma and my Doctor said my tumors shrank considerably. Will have a Pet Scan in November

posted 15 days ago
A MyLymphomaTeam Member said:

I had CAR-T in March of this year. It was painless. I did have some side effects but the team took care of it, I was in the hospital for the side effects for 2 days, for the transplant 5 days but normally it's 3 weeks to 1 month depending on how you do. I didn't have CNS lymphoma but I was treated for it prophylactically. I was treated at MD Anderson, they were wonderful. I will be having my 3rd PetScan next month, I'm on surveillance now. I'm in remission and my doctor believes it will never come back.

posted 2 months ago
A MyLymphomaTeam Member said:

Thank you!

posted about 1 year ago
A MyLymphomaTeam Member said:

I am so sorry to hear about your son. I really didn’t understand that there were multiple types of stem cell transplants. So I have no direct knowledge for you but will keep your son in my prayers

posted about 1 year ago
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