Anyone Have Any Input On Cumulative Effect Of Chemo And Rituxan? | MyLymphomaTeam

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Anyone Have Any Input On Cumulative Effect Of Chemo And Rituxan?
A MyLymphomaTeam Member asked a question πŸ’­

My husband didn't seem to tolerate this second treatment as well as he did the first. He is nauseous, not eating much and weaker than ever.

posted December 2, 2022
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A MyLymphomaTeam Member

You may want to consider the drug, Syndros. It's synthetic THC, like what is naturally in cannabis, which if you live where it's legal, try it... During chem I would sometimes eat good, but other times lose my appetite completely. My motivation to go on (like I had a choice) each day, sick as I was, had become more of a struggle everyday. I couldn't imagine for a second going through chemo without.

In case you can't afford it - very expensive and I don't think my insurance covered it, I was able to arrange a workable plan with the drug company (I called them direct and explained my situation).

Also note that Syndros (the modern equivalent to Marinol) is not approved for use during chemo. It is for anorexia and AIDS. Your doctor however (mine did) should be able to arrange an exception.

posted December 3, 2022 (edited)
A MyLymphomaTeam Member

Thank you Annette! Best of luck to your husband with his chemo. I am not sure why he hasn't received any blood transfusions. He at one point received iron infusions but this was before treatment started and they didn't help. Don is definitely anemic and his number is barely over 7. They are I think using this as the standard for transfusing. I wish they would pay more attention to how he actually feels. He has gotten fluids on random days when he had Dr. or Lab appointments but he tends to have very low BP and they are always trying to raise it up. I will be asking about the transfusion and also extra hydration. Thanks again! I appreciate you!
Katie

posted December 2, 2022
A MyLymphomaTeam Member

Hi Katie. I am an oncology nurse also. Each chemo will be a bit more taxing on the system. He just starts to recoup when it’s time for treatment. Chemo Trying to get the cells at the growth stages. Depending on how his bone marrow recovers. It is so important to keep hydration and exercise up. I just had this conversation with my husband who starts chemo on Monday. β€œ you have to drink, and you have to keep active β€œ. Also his blood counts may be down and that will make a big difference in how weak is is. It is very common to get supportive blood transfusions in between treatment and can make a huge difference on how he is feeling as anemia can also cause nausea feelings. My suggestion, if it hasn’t happened at your facility, he may need supplemental hydration days where you go in just for IV fluids, and if he is dizzy, nauseated, weaker, ask the Dr at what point does a blood transfusion get considered. Prayers with you πŸ™

posted December 2, 2022

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