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A MyLymphomaTeam Member asked a question 💭
San Sntonio, Tx

My auxiliary nodes swole afte Covid booster. I had two ultra sounds but after two were shown to be growing, biopsy ordered. Biopsy results low grade lymphoma leukemia. Doctor referred me to Hematology. CDC showed high WBC but said smudge cells present. Has anybody had this and if so does the smudge cells mean my low grade lymphoma is CLL? I’m devastated.

December 24, 2022
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Answer Summary

Members connected over their experiences with swollen lymph nodes, particularly following COVID boosters, and the challenging journey toward a... Read more

Members connected over their experiences with swollen lymph nodes, particularly following COVID boosters, and the challenging journey toward a lymphoma or CLL diagnosis. Several members shared practical advice, including using heating pads to reduce pain and swelling in affected nodes, bringing a trusted person to medical appointments to help process overwhelming information, and persistently advocating for thorough testing when symptoms are dismissed or unexplained. A recurring theme was the emotional weight of navigating confusing diagnoses and unresponsive doctors, met with encouragement to trust your instincts, keep asking questions, and lean on faith and community support through the uncertainty.

A MyLymphomaTeam Member

Hi Patricia
The heating pad has really helped me with the painful inguinal nodes and it has helped reduce their size too. I have joint pain but not sure if it’s from the CLL or the Fosomax the doctor prescribed for me right before I got the CLL diagnosis. God made these bodies and he alone truly understands them. Hope you feel better too.

February 26, 2023 (edited)
A MyLymphomaTeam Member

Hi Wanda. So sorry to hear you are going through this. Yes, Covid boosters can, in some people, create a reactive response in the lymph nodes and they eventually recede back to normal. Often Lymphoma is found when they are looking at other things and so these two nodes may have been there before your booster reaction. Your physician should hopefully be assessing your diagnosis collectively on other tests such as flow cytometry, bone marrow biopsy as well as your bloodwork. Smudge cells do have an association with CLL but not absolutely, and that's why your oncologist would be evaluating not just the hematology but the results of the other tests also.

I hope you have a chance to sit down and ask all these questions to your oncologist. This is such a confusing time and a lot to digest. I remember taking a a family member with me on my visits. Before I went, I would tell him to write down all my questions and listen carefully to the oncologist's answers, because once I got to the office, I found things got overwhelming because I was dealing with emotions and couldn't recall a lot of the details. I hope you have someone who can be your 'wingman'. Praying for you and hoping for the best in your journey.

Here is a link that might be helpful (copy and paste):
https://www.cancer.org/content/dam/CRC/PDF/Publ...

December 24, 2022
A MyLymphomaTeam Member

My primary care Dr kept tell ih ng me that after my (3) CoVid Boosters the swelling in the armpit area "is nothing." 🙄 They lasted 3-4+ weeks, happened on both arms where covid inj was given.

You Are Your best & only (reliable) advocate:
So keep questioning, asking, inquiring, making those Dr. Appts until You get answers!

Consider my example.
Do Not settle for," Weight loss is good, right?" ... I lost >50 lbs. in < 1 yr & my primary care Dr. thought it was wonderful - so he completely ignored me when I asked for the causes... What could be causing an
unintentional weight loss! No changes in eating, routine, exercise... I was unwillingly.. just dropping size after size..of clothes - & fearful.
Take care, be well 🙉

May 20, 2023
A MyLymphomaTeam Member

Hi OuiCestMoiValE
Sadly the ones under one of my arms increased in size which began my cancer journey. I got the newer Covid booster and got enlarged nodes under the other armpit. They were not as large as they had been under my other arm. They are still present but don’t seem to have grown. I blame the mnRA but only one doctor agreed that the vacs can lead to lymphoma. So now I’m diagnosed with CLL.

April 4, 2023
A MyLymphomaTeam Member

Thank you Wanda. I was having a problem logging in. Never had to do that until recently. Hope you are feeling better

February 26, 2023

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