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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLymphomaTeam Member asked a question 💭
Bradenton, FL

My husband has CLL and SLL. He has broken out in a rash that covers his entire body from head to toe. Some look like rashes and most are red little dots all over. It looks like he has the measles, but he doesn’t. He itches everywhere and his neck lymph nodes are now swollen on both sides. Is this a sign that it has become an aggressive leukemia cancer?

June 11
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A MyLymphomaTeam Member

Victoria I’m sorry to hear about your husband. I know how scary it can be. The rash is a common symptom from what I have seen and heard and I’ve experienced it. Although with all the things you have described it’s important to get to your doctor. The swollen lymph nodes on his neck are a sign that it may have progressed or changed.
Kindly,
- Michelle

June 12
MyLymphomaTeam

This sounds really distressing, and it's completely understandable to be worried. A full-body rash with swollen lymph nodes in someone with CLL/SLL absolutely warrants an urgent call to his oncologist or a visit to the ER — please don't wait on this one.

A widespread, intensely itchy rash covering the whole body is Show Full Answer

This sounds really distressing, and it's completely understandable to be worried. A full-body rash with swollen lymph nodes in someone with CLL/SLL absolutely warrants an urgent call to his oncologist or a visit to the ER — please don't wait on this one.

A widespread, intensely itchy rash covering the whole body is sometimes called erythroderma. This can be associated with a type of lymphoma called Sézary syndrome, which is a more aggressive form of cutaneous lymphoma that affects the skin all over the body. The combination of symptoms your husband is experiencing — including:

- Full-body rash with red dots
- Intense itching from head to toe
- Newly swollen lymph nodes on both sides of the neck

— are signs that need immediate medical evaluation. Swollen lymph nodes alongside a spreading rash can indicate the lymphoma is progressing or changing in nature.

Only his medical team can determine whether this represents a progression of his CLL/SLL or something else entirely. Please seek urgent medical attention today rather than waiting for a scheduled appointment.

June 11

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