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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
July 21
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Answer Summary

Members responded to a question about whether Rituximab infusions can cause blurry vision, eye tenderness, and tinnitus, with many sharing... Read more

Members responded to a question about whether Rituximab infusions can cause blurry vision, eye tenderness, and tinnitus, with many sharing that they experienced similar symptoms during or after treatment. Several members described a range of eye-related side effects, including tired and uncomfortable eyes, eyelids turning inward requiring surgery, and one member noting a diagnosis of Primary Vitreoretinal Lymphoma, urging others to keep monitoring any persistent symptoms. A recurring theme was frustration with doctors dismissing treatment side effects like muscle weakness, balance issues, and tinnitus, paired with encouragement to seek specialized care at major cancer centers like Dana Farber or MD Anderson.

A MyLymphomaTeam Member

I too have tinnitus - never had it before until was treated for Lymphoma.

God bless ya, Dave

August 16
A MyLymphomaTeam Member

Hello Jack-
Thanks for sharing your experience and thoughts. I am sorry and relate with your feelings about this. My muscle weakness and loss of balance cause me so much frustration. The other symptoms are just as bad. I agree nobody will ever convince me it’s not from the treatment and the lymphoma. My doctor is good at dismissing the symptoms and acts like it’s something he’s never heard. I am a completely different person. Sending you many positive thoughts. Stay strong Take care-
Michelle

July 25
A MyLymphomaTeam Member

During treatment my eye lids on both eyes turned inward, rubbing the Corneas, so I could not read. Used an eye jell till I had surgery to correct. Muscles that control eye lids must have weakened? After surgery my eyes are fine. Did not have blurriness any time during treatment. Chemo was Rchop

July 22
A MyLymphomaTeam Member

hi Ruth
i have had Waldenstrom's for 15 years. I have had different treatments. Now, i have a three inch tumor on my pelvis.My doctor is shrinking it with jaypirca 2 100 mg tabs once a day. A few mounths ago i could barely walk. the other day, i walked over a mile. I mailed a letter. I went grocery shopping. I am fortunate, if that is possible, to live in Mass. I go to Dana Farber in Boston, MA I know people say it, but my hospital is the best in the WORLD for treating WM. Have your doctor get in touch with them. They are great. They will help

September 3
A MyLymphomaTeam Member

Keep up the hope! Also keep reaching out to Doctor and cancer groups to share your concerns. That is what they are there for…

July 29

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