Answer Summary

A member in remission from small cell lymphocytic lymphoma shared a concerning mix of symptoms including a persistent headache, eye numbness... Read more

A member in remission from small cell lymphocytic lymphoma shared a concerning mix of symptoms including a persistent headache, eye numbness and pain, and bloody lips after recently stopping IVIG treatments. The community rallied with prayers and encouragement, urging her to visit the ER if symptoms didn't improve, and her oncologist prescribed steroids and antibiotics while searching for a specialist. A recurring theme was the uncertainty of whether the steroids were helping or hurting, with one member who also has SLL sharing that they cannot stop IVIG due to infection risk.