Answer Summary

A member in remission from small cell lymphocytic lymphoma shared a difficult stretch of ongoing headaches, eye pain and numbness, and other... Read more

A member in remission from small cell lymphocytic lymphoma shared a difficult stretch of ongoing headaches, eye pain and numbness, and other troubling symptoms after stopping IVIG infusions, sparking an outpouring of support and shared experiences. Several members encouraged her to visit the ER if needed, and updates from her showed partial relief from steroids and antibiotics, though symptoms continued to fluctuate. A recurring theme was the importance of resuming IVIG, with members sharing how much the infusions helped them feel better, and one member celebrating alongside her as she prepared to restart treatments.