I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
For some types of blood cancer there's no evidence that early treatment, when you have no symptoms, improves outcomes. Instead, doctors recommend saving treatment for later, when it will have the best… read more
I had Car t. Have had a lot of shrinkage, still not in remission. I also get Keytruda every three weeks. Next scan on the 30th. Trusting God for total remission.
I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?
Thank you so much for all your replies. 🌻. Definitely God sent.🙏. Be blessed, be strong💐. Needed to read this, like now🤕. What a coincidence, am at Onco. Clinic waiting to be called, scheduling 8… read more
Thanks for the hugs! I am home now & feeling very good. I am trusting that the treatments are working. Love to all!
Simple question. Should be simple answer.
Car t
Thank you!
I don’t know yet. But after my recent investigation it was very fast that they wanted to see me again. With my other cancer (brain tumour) I get to see my oncologist on the same day after the MRI. I… read more
I know that night sweats, fatigue, and itching can be related but Drs don't seem to know why and don't really offer any treatment or explanation other than if the "B" symptoms get bad enough or the disease seems to be progressing as evidenced by your routine CT and/or bloodwork - then it is typically time to bring on the Chemo or Immuno therapies. My Drs don't even document these things when I report them now. I am on my 2nd serious sinus infection this year. Anybody else?
Ex. My son is immune suppressed bcs of medication he takes for a rare chronic disease and we are cautious but not overprotective of his environment. I assume it is the same for ppl with NHL watch and wait? Or are there additional precautions against infection, beyond the normal precautions, specifically related to cancer? Thanks
I find the watch and wait so hard. For me is like playing with a loaded gun, the problem is that you do not know really what the caliber is going to be. I just finished treatment for a FL Grade 2… read more