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June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
My uncle has DHL and he just completed his chemotherapy and went to radiotherapy for persisting mass ...he has deauville's score 2 and has complete metabollic response for the initial treatment… read more
I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
For some types of blood cancer there's no evidence that early treatment, when you have no symptoms, improves outcomes. Instead, doctors recommend saving treatment for later, when it will have the best… read more
Non Hodgkinslymphoma
I was diagnosed age 79 with NHL slow growing, in 2022. Oncologist said he has had patients live 20 years with this type. I asked if one can have this with no symptoms pre diagnosis (unless you can… read more
I have had no hodgkins lymphoma for over 9 months and receive chemotherapy every three weeks weeks.
So true Pat…Such good words of advice which I will take on board. Xxx
Thanks Cathy2!
Two plus years of difficulty breathing and multiple Urgent Care/ER Md’s telling me all labs and heart look great! “Btw heres some muscle relaxers.” Monday this past week I hyperventilated in my MDs office. She sent for a stat CT of chest and there are multiple lymph nodes that are “very large”. On tues they did an abdominal CT they had to get special approval because of too much contrast under 24 hours. It came back clear and more labs/ekg, also clear. Worked me into a Pulmonologist Weds and he… read more
I would certainly say so, I always think the worst part of any diagnosis is the 'not knowing' once you have the information regardless of what it is you can put your mind to it and plan accordingly… read more
What are the chances I will have another reoccurrence of B cell nodal marginal zone non-Hodgkins lymphoma? Diagnosed Stage 1 treated with radiation, reoccurrence 8 months later more radiation. Thank you for any data &/or treatment experiences.
Ceil, I was diagnosed with WM in the fall of 2018. My initial treatment was 6 infusions of Rituximab and Bendamustine. This shrunk my tumor considerably and brought my blood numbers back into line. In… read more
Hello Group - My name is Pam, 63 year old retired nurse. I just finished 6 months of Bendemustine/Rituxamab (BR) treatment for follicular lymphoma stage 4. The majority of providers are recommending a 2 year - every 2 month infusion of Rituxamab. I've also heard some LLS physicians state they no longer use this protocol due to weakening of the immune system - with COVID and all still active would increase our chances of getting it. Anyone have advise/opinion on this? I personally don't feel… read more
