I have had no hodgkins lymphoma for over 9 months and receive chemotherapy every three weeks weeks.
So true Pat…Such good words of advice which I will take on board. Xxx
She’s in England and would like to try alternative therapies
I was diagnosed with T-Cell and have been through a lot. 6 rounds of chemo put me in remission and a few months of being in remission, I went through a stem cell transplant with 11 more rounds of… read more
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
Ceil, I was diagnosed with WM in the fall of 2018. My initial treatment was 6 infusions of Rituximab and Bendamustine. This shrunk my tumor considerably and brought my blood numbers back into line. In… read more
Non Hodgkinslymphoma
I was diagnosed age 79 with NHL slow growing, in 2022. Oncologist said he has had patients live 20 years with this type. I asked if one can have this with no symptoms pre diagnosis (unless you can… read more
T- Cells in node sampling show 84%T-cells:7.2:1 CD-4 /CD-8 Ratio 10.6 % of cells are atypical CD-5 ( bright)/CD-4 positive T-cells lacking CD-3/CD-8/CD/10/CD-16/CD56.
I don’t know yet. But after my recent investigation it was very fast that they wanted to see me again. With my other cancer (brain tumour) I get to see my oncologist on the same day after the MRI. I… read more
I'm 20 yrs. into my journey with nhl follicular b-cell indolent, many treatments, many relapses...treatable not curable
now we're considering a CAR-T cell treatment - a transplant procedure of my T cells approved by FDA in 2016...and people are experiencing complete remission as in possibly cured
Has anyone undergone this particular treatment & if so I'd greatly appreciate the opportunity to chat...
It's a pretty intense procedure with lots of possible serious side effects...
Thanks for any… read more
Dennis3, I am so sorry CAR-T didn't work for you and hope the chemo will. When I first heard about CAR-T, the cure rate was only 40%, which made me reluctant to try it. But I didn't really have… read more