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Thanks so much for reaching out. I sure will follow up!
I went to oncology and he gave me copy of biopsy. Does anybody know what it means when it says mature low grade B-cell lymphoma with CD5 co-expression , most consistent with small lymphocytic lymphoma/chronic lymphocytic leukemia
Wanda, I was originally diagnosed with what was called an indolent NHL. or lymphoplasmacitic lymphoma. One valuable resource I used to educate myself was the International Waldenstrom's… read more
I was diagnosed with CLL/SLL 9/2022 after finding swollen lymph nodes in my neck. Now they are in several parts of my body, and I have a slightly elevated WBC, but have no other "significant" symptoms. I'm on watchful waiting protocol. Has anyone else dealt with increasing lymph node swelling over a fairly short time and received no treatment? Also, could swollen nodes in the throat area affect swallowing? Seems like I have a harder time swallowing my vitamins.
Like many others on… read more
My swollen lymph nodes was in my right underarm. I was given 13 weeks of radiation, now in remission for 2 years.
Ex. My son is immune suppressed bcs of medication he takes for a rare chronic disease and we are cautious but not overprotective of his environment. I assume it is the same for ppl with NHL watch and wait? Or are there additional precautions against infection, beyond the normal precautions, specifically related to cancer? Thanks
I find the watch and wait so hard. For me is like playing with a loaded gun, the problem is that you do not know really what the caliber is going to be. I just finished treatment for a FL Grade 2… read more
I found out today that I am going to be taking an oral chemo drug that sounds like McCalquien but I didn't want the person to spell it. Does anybody know the exact spelling?
Thanks
Jay Knyal
Thank you SO MUCH for your response!
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
There are 60 or so types of lymphomas. Crazy.. I have marginal zone B cell nhl …I google to reputable websites for info. Especially to sort out the diagnosis. All the best to you.
Two plus years of difficulty breathing and multiple Urgent Care/ER Md’s telling me all labs and heart look great! “Btw heres some muscle relaxers.” Monday this past week I hyperventilated in my MDs office. She sent for a stat CT of chest and there are multiple lymph nodes that are “very large”. On tues they did an abdominal CT they had to get special approval because of too much contrast under 24 hours. It came back clear and more labs/ekg, also clear. Worked me into a Pulmonologist Weds and he… read more
I would certainly say so, I always think the worst part of any diagnosis is the 'not knowing' once you have the information regardless of what it is you can put your mind to it and plan accordingly… read more
