I was first diagnosed in late 2019. Was treated with rituximab. It came back in 2022 and was treated with rituximab and bendamustine. That treatment only wrapped up a year ago (Feb 2023. ). I’m starting to have symptoms again. Have others experienced rapid reoccurrences? It's just frustrating to think I need I my need to do the chemo dance yet again.
I’m on the same treatment for MZL. Doing 4th treatment mid month.. moving forward is all one can do. Time to consult with oncologist… what are your symptoms… take good care of yourself..
Contact Allsup (allsup.com). They will help you through the process. They were great to work with.
Hey team, Anybody experiencing long term effects of RCHOP? I feel worse now than when I was going through my 6 cycles. Severe fatigue, neuropathy that makes it difficult to walk far or use my hands for long periods. I’m in my maintenance period. Will have my 2nd Rituxan infusion in 2 weeks.
Thank you. I just need to keep reminding myself that I’m indeed alive.
Hubby thinks he can independently go to his chemo treatments.He will be having Bendamustine and rituxan.
First one no. Then the rest yes with no problem at all, but last one hubs came to celebrate. It was on new years eve 2019
Best wishes
B cell lymphoma on watch for 4 months
Going through the ups and downs of the unknown of being treated with cancer can have the equivalent of PTSD, don’t be afraid to consult with a therapist to exclude his .Add a grandchild toddler , no… read more
I am not mobile at all due to another terminal condition (parkinson's and dementia). I wear diapers, but have been able to have BMs on a portable toilet. Fearing what to expect and would rather have the truth from others than the 'no worries, most people beat lymphoma' stuff the doctors are pushing. Has anyone had an ill family and then they were dx with NHL? Mine is in the bones, stomach and three large tumors in my abdomen
I welcome honesty, no matter what you have to say. I want to live… read more
Prayers are Powerful Medicine~
Ex. My son is immune suppressed bcs of medication he takes for a rare chronic disease and we are cautious but not overprotective of his environment. I assume it is the same for ppl with NHL watch and wait? Or are there additional precautions against infection, beyond the normal precautions, specifically related to cancer? Thanks
I find the watch and wait so hard. For me is like playing with a loaded gun, the problem is that you do not know really what the caliber is going to be. I just finished treatment for a FL Grade 2… read more
I’ve replaced coffee with Matcha to boost my energy for years now. I live alone so fatigue is a big enemy for me if I don’t have the energy to cook or run errands. I welcome all advice/tips! Thanks.
Yes, You can get 100% natural supplements that can help from Nature Care Health Clinic , this supplements helps regulate your body system It also reduces fatigue, etc promotes tissue regeneration and… read more
My 21 yo daughter was diagnosed with cHL stage 3/4 in Oct 23. She was prescribed 6 cycles ( day 1 - 50 mg and day 15- 100 mg) of A- AVD protocol. After cycle 2, her PET CT scan showed No evidence of disease
Due to side effects Brentuximab was paused in cycle 4..It has been resumed in cycle 5&6 with a reduced dosage (50 ml each on day 1& day 15). Her chemo sessions were supposed to end on May 10 but the oncologist says that the 2 doses she missed in cycle 4 needs to be given as maintenance… read more
JoytNair
Hi! I have/had DLBCL and had treatments of RCHOP chemo. I didn't have to have maintenance however, I too was tired and didn't want the last two treatments out of a 6 cycle treatment plan.… read more
My last chemo treatment was 2 years 3 months ago. I'm still having follow up appointments. Apparently my insurance is junk and it doesn't cover much, so these appointments are pretty expensive.
My doctor said I was in remission about 18 years ago and I'm still under observation.