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I did and was denied as well!
Hey team, Anybody experiencing long term effects of RCHOP? I feel worse now than when I was going through my 6 cycles. Severe fatigue, neuropathy that makes it difficult to walk far or use my hands for long periods. I’m in my maintenance period. Will have my 2nd Rituxan infusion in 2 weeks.
Thank you. I just need to keep reminding myself that I’m indeed alive.
From experience, i will strongly advice you contact NCHC , they are well known for treating chronic diseases such as tuberculosis,diabeties,cancer etc . with their natural supplements which is… read more
Help you take a nap ?????
Filed a claim about two years ago...haven't heard anything. I am currently in remission (because NHL can't be cured) I had infusions over a period of 15 months. I have to have blood work every three months and scans every 6 months.
I have CLL too. I know the homes near me had to spray their grass and who knows what they used. It's one of those Home Owners place where people tell you what to do. Yuk! I do walk over there and… read more
I know my diet has a direct influence on my level of inflammation. After feasting on Thanksgiving I felt AWFUL yesterday. Sugar especially. I did speak with a RD but basically had the knowledge she imparted. As with most things in life, I’m unable to “perfectly” follow eating all whole grains, eating a rainbow- especially raw veggies, etc. And with the other things the RD shared (red meat no more than 2x a mo, 8 glasses of water a day, etc) I do the best I can with my other medical issues, in… read more
Hi Sue, I'm the same way as you, some of the grains & veggies I can't eat, we do the best as we can, we know what is best for us. Doctors seam to lump everyone in the category, for instance I'm told… read more
Good question! My understanding (my Drs. have no idea) is I feel I had it for many years. I began having fatigue, night sweats and weight loss, loss of appetite beginning around 2008. I also had a… read more
I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.
I do too Terrie. It’s frustrating I know. Some days I’m more tired than there. Some days I feel nauseas but that’s nerves. I worry. Now I have a UTI where the heck did they come from 🙄.
Today is yet another good 👍☺️ day. But I'm thinking about depression. And I'm going to answer my own question and look forward to hearing how YOU deal with depression. There's been several times that I suffered severe depression. Having cancer is certainly reason for depression. I was diagnosed years ago with situational depression. I also have PTSD, caused by things that happened in the fifties and seventies. Sometimes psychiatric help is required, or some form of therapy, or medication. Even… read more
Hi friends, I recently had a bone marrow biopsy that showed that 37% of my bone marrow is being affected by the marginal zone lymphoma. My doctor has recommended 4 weekly treatments of Rituximab. I am curious to know from any of you who have had treatments with this what your experience has been and what I should expect. My understanding is that some people have allergic reactions to the treatment and that it also affects your immune system, but other than that I don’t know much. Thanks in… read more
Thanks Joe
