I've never been a sick person . I just had a great immune system and didn't catch all the viruses that went around. Now I'm sitting here about to be discharged from the hospital for the second time after being admitted for neutropenia and fever. I'm weak. I must look awful because the doctors are asking if I need any equipment or services I was still trying to work full time but my job got nasty about me missing time and it's either disability or get fired. I just don't know how to be a sick… read more

I'm 45yrs old & was diagnosed with SMZL a couple weeks ago. My partner & I have an appointment with my Dr on 1/9 to discuss next steps, etc. We have decided to not tell our children (16yr old twins, 14 & 11) until after meeting with the doctor. I'm sure they will have a ton of questions I just don't have the answers to yet. Plus, I didn't want it to affect their holidays. We have also not told any family for the same reason. I have only told two of my best friends.

Any advice on how to share… read more

Before I started the radiation therapy, the specialist said: “this/I will cure you”(coincidently his last name in French and English is HERO)! I thought: “nice of him to think so. I think this guy takes his last name a little too seriously.” Was I being too cynical? Yes, because I prefer to face reality with facts in order to be able to make relevant decisions and plans. Fact is, in my case at least, radiation would help “clear” the area to be treated temporarily. Radiation, as far as I know, is… read more

After 2 failed treatments, I was sent to a CAR-T specialist. He is recommending this treatment and I'm learning all I can online. I'd love to talk with someone that has gone though it. It's not chemo. It's more like gene therapy adding a receptor to your T cells.

Thanks,
Chris

I’ve got a question, I’ve got cancer, so much has changed with me. There are times I feel like someone else has taken over my body. I guess what I’m trying to say is that it’s hard having cancer and it’s not just me going through this. My whole life has changed, I can’t travel very far, it’s hard on me. It’s hard enough having cancer, I don’t even go outside anymore unless going to appointments, letting the dog out. My daughter keeps pushing me to come there and there is colorado. Lived in… read more

Do you use things spiritual in dealing with your cancer?

If so what do you use? Prayer? Meditation? Certain books? Church, synagogue or mosque? Music? Poetry? I ask because I'm always looking for useful spiritual tools. Personally I use 12 step material and the book A Course In Miracles along with prayer. And there are certain organizations that I've found useful, that send out free booklets and magazines. But I'm always looking for useful things to add to my repertoire.

I am one year lymphoma free in June I have been doing great but now I might have it it my brain Tests are coming.

I’d like any and all advice, information and stories on diffuse large B cell lymphoma!