June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.

*only radiotherapy left. But the scan also showed that my tonsils and my lymphnode on the other side (not where I actually had my hodgkins lymphoma) are kind of reactive (which can also be caused by different stuff like allergies, which i suffer from at the moment). They want to remove them and this lymphnode to make sure there is no more cancer. Does anyone made similar experiences? In Germany it is really rare and my doctors never had someone with something like this..

I have had no hodgkins lymphoma for over 9 months and receive chemotherapy every three weeks weeks.

My check up yesterday, I knew would be with assistant, I met 1 time prior and tried not to make judgment. Yesterday I asked pointed questions! I couldn't get an answer!!!! Agh! I asked "what is the name of my leukemia?" She's scanning my chart online... ummm I don't know, it doesn't say. Wow I say. The initial blood work said CD5 small B cell leukemia. She then says "yeah, yeah it says that". Then I asked "Is that the name then?" She said "Um I don't know" I said OK then what's the name of… read more

I am one year lymphoma free in June I have been doing great but now I might have it it my brain Tests are coming.

I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?