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Lymphoplasmacytic Lymphoma
I have Waldenstrom's macroglobulinemia did you have hyperviscosity of the blood? I'm currently on wait & see 👀 been diagnosed 2 years ago.
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
I'm 53 and was diagnosed last year with stage 4
I have been following IWMF.com since I was first diagnosed. The information they provide is so valuable to understanding WM. Based on this I am traveled to the Dana Farber in Boston to meet with a WM… read more
Just had shoulder manipulation on uninjured shoulder n doing well so far, three days out!! PT is not fun, but it is certainly helping and the pain before has lessened and I can now move my arm… read more
Yes. Had 4 chemo infusion treatments. Igm counts went down quickly. THe after effects have been quite difficult. Was diagnosed 3/2023. Lack of energy is ongoing.
I was diagnosed with SLL/CLL and at this point I am at the wait and watch stage. Anyone else in this situation?
Stage 4 SLL/CLL. Watch and wait for 15 years!! Never had any treatments!
I have Waldenstrom’s Macroglobulinemia but have no symptoms. I fear all the Covid shots I got might have been a factor in my diagnosis.
Yes, that’s what I’m talking about! Same thing at my cancer center…could barely find a parking spot in the lot! It was packed. I’m afraid to put more of that vaccine in my system . Thanks for… read more
I, who am allergic to nothing, had a sneezing session that lasted about 20-30 minutes during my first infusion. My nose stuffed up and I could barely breathe. It all went away immediately when the nurse flushed the IV.
Then came the sub-q injection the next week. All was fine until 3 days later. I woke up with pain and fever on my abdomen, below the injection site. The area was swollen about the size of a deck of cards and painful to touch
The following morning (yesterday) it was more painful… read more
Diagnosed in 3/2023. Had
4 rounds of chemo infusions
Counts are staying in normal range. After effects are keeping me down - foot/knee issue (now resolved), aching hips n lower back, currently have… read more
