Praying you find a donor soon. 🙏🏼
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?
Thank you so much for all your replies. 🌻. Definitely God sent.🙏. Be blessed, be strong💐. Needed to read this, like now🤕. What a coincidence, am at Onco. Clinic waiting to be called, scheduling 8… read more
Same but large stage 4 and it was on my neck. What do you mean follicular?
I found out I had follicular lymphoma in my right groin in February 2021. In Dec 2021, I had a CT scan and found a small lymph in my right armpit. I am on watch & wait with no symptoms. I had a mammogram last week& need to do a follow up on the right breast. I am nervous. what others did watch and wait and at what point was it changed to treatment. My doc said that I wouldn't need chemo, and if the groin lymph node got bigger, they would do radiation. But not sure if that changes with lymph… read more
Briefly…I had follicular lymphoma and went on watch and wait until it transformed into double expressor diffused large B cell lymphoma and then I started chemo and reached remission. Two years later… read more
I am in remission now. Live on Vancouver Island in BC
I think this should be investigated further.
I don’t know yet. But after my recent investigation it was very fast that they wanted to see me again. With my other cancer (brain tumour) I get to see my oncologist on the same day after the MRI. I… read more
Stay strong, I've failed five in five and stopped a sixth due to financial and insurance stuff.
FOllicular Lymphoma
Roslyn2
I agree...it’s good to have scan to check spleen. Hope all is well🙏
I was diagnosed with Follicular Non Hudgkin's Lymphoma last year in November. Had 4 Month Chemo with Bendeka. Now in remission, and was recommended to do a 2 year maintenance treatment with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]. Anybody else has the same treatment? Is it standard to do it after chemo? What are the long term side effects? I feel fine, but still worry about this
Anybody completed the 2 year? Was any recurrence of the cancer shortly after finishing treatment.… read more
I tried the maintenance once and mine recurred while on it. I do much better just getting a round of rituxan when it recurs.