nearly half of mylymphomateam members say they feel isolated and alone and lymphoma | MyLymphomaTeam

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What Is CLL/SLL?
A MyLymphomaTeam Member asked a question đź’­
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A MyLymphomaTeam Member

Thanks so much for reaching out. I sure will follow up!

Anyone Out There Applied For Social Security Disability Due To Lymphoma? If So Outcomes?
A MyLymphomaTeam Member asked a question đź’­
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A MyLymphomaTeam Member

I will contact Allsup.com as you suggested.
Thank you🙂

Long Term Effects Of RCHOP
A MyLymphomaTeam Member asked a question đź’­

Hey team, Anybody experiencing long term effects of RCHOP? I feel worse now than when I was going through my 6 cycles. Severe fatigue, neuropathy that makes it difficult to walk far or use my hands for long periods. I’m in my maintenance period. Will have my 2nd Rituxan infusion in 2 weeks.

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A MyLymphomaTeam Member

Thank you. I just need to keep reminding myself that I’m indeed alive.

Anyone Else Having Family Problems
A MyLymphomaTeam Member asked a question đź’­

I’ve got a question, I’ve got cancer, so much has changed with me. There are times I feel like someone else has taken over my body. I guess what I’m trying to say is that it’s hard having cancer and it’s not just me going through this. My whole life has changed, I can’t travel very far, it’s hard on me. It’s hard enough having cancer, I don’t even go outside anymore unless going to appointments, letting the dog out. My daughter keeps pushing me to come there and there is colorado. Lived in… read more

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A MyLymphomaTeam Member

I can relate with everyone on here that has made a comment about what their life is like. Maybe everyone that has cancer should start their own community to live in so we can support each other ❤️ You… read more

Anyone Have Experience With Rituximab Treatments
A MyLymphomaTeam Member asked a question đź’­

Hi friends, I recently had a bone marrow biopsy that showed that 37% of my bone marrow is being affected by the marginal zone lymphoma. My doctor has recommended 4 weekly treatments of Rituximab. I am curious to know from any of you who have had treatments with this what your experience has been and what I should expect. My understanding is that some people have allergic reactions to the treatment and that it also affects your immune system, but other than that I don’t know much. Thanks in… read more

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A MyLymphomaTeam Member

Yes, it has kept my numbers under 300 for 4 years plus
Only 3 hours once a month 6 months, Rituxin..it was ez to handle. But, I did get Covid during the 1st infusion of Rituxin. So it may have not… read more

Rituxan
A MyLymphomaTeam Member asked a question đź’­

How long after treatment did patients see positive results like having more energy less fatigue less b symptoms like sweats it been a month since my wife completed here front line treatment of Rituxinab 1 a week for a month

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A MyLymphomaTeam Member

Hi Linda
You will be fine. I know it is hard going through all this stuff but it will all work out wonderful for you. Just keep smiling and each day will be better.

How Much Does R-CHOP 6 Cycles Cost?
A MyLymphomaTeam Member asked a question đź’­

Can anyone give me an estimate? Husband was approved for 70% assistance/discount through cancer center but they still can’t give an estimate or what we’re taking 70% off of??

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A MyLymphomaTeam Member

Rebecca3, I agree with you about lifting the veil of secrecy.

Just Went To Oncologist
A MyLymphomaTeam Member asked a question đź’­

I don't know what is the matter with me. I am still fatigued. Sunday I was up and about, happy, etc. Monday I spent the entire day in bed....so fatigued. Informed my oncologist. He told me it has nothing to do with my chemotherapy because my last dose was 8 months ago. Said that my labs look great, etc.

Can someone please tell me if I am imaging this? I love to work and be active.

Thank you.

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A MyLymphomaTeam Member

Thank you

As U Go Thru Chemo Does It Get Worse The More Treatments You've Had?
A MyLymphomaTeam Member asked a question đź’­
Non-Hodgkin Lymphoma Treatment: What You Need To Know Read Article...
A MyLymphomaTeam Member

Thanks for sharing your journey and I hope you will feel better soon.

Anyone On Here Have Diffuse Large B Cell Lymphoma?
A MyLymphomaTeam Member asked a question đź’­

I didn't see it listed as one of the "lymphomas". I was diagnosed February 20, 2019. I had chemo and was told in October that I was in remission.

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A MyLymphomaTeam Member

Your the same story as me I had NHL with Diffuse Large B Cell last year, today I am in remission since Oct 2023