acceptance realigning expectations and extending grace to ourselves and lymphoma | MyLymphomaTeam

Connect with others who understand.

sign up Log in
Resources
About MyLymphomaTeam
Powered By
Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "acceptance realigning expectations and extending grace to ourselves"

reset
I Had 6 Rounds Of R-CHOP And Getting Ready To Get 18 Radiation Treatments. What Is My Estimated Life Expectations?
A MyLymphomaTeam Member asked a question 💭
•
View reactions
A MyLymphomaTeam Member

I don’t think anyone can answer that as no one would know. I’ve had those thoughts as well.went through 6 rounds of choep and now need 15 radiation treatments. One thing for sure if you don’t treat… read more

I Have NHL B Cell And Am Watch And Wait. How Cautious Should I Be, In The Watch And Wait Phase, Regarding Protection Against Infection?
A MyLymphomaTeam Member asked a question 💭

Ex. My son is immune suppressed bcs of medication he takes for a rare chronic disease and we are cautious but not overprotective of his environment. I assume it is the same for ppl with NHL watch and wait? Or are there additional precautions against infection, beyond the normal precautions, specifically related to cancer? Thanks

•
View reactions
A MyLymphomaTeam Member

I find the watch and wait so hard. For me is like playing with a loaded gun, the problem is that you do not know really what the caliber is going to be. I just finished treatment for a FL Grade 2… read more

I Have FL Stage IIIA, Grade 3A, Ki67 60%. Doc Recommends Rituximab And LDRT. Getting 2nd Opinion Too. Any Others Like Me Or W/treatment?
A MyLymphomaTeam Member asked a question 💭
A MyLymphomaTeam Member

RCHOP

So Can Indolent B Cell Cancer Turn Into Anything At A Later Point?
A MyLymphomaTeam Member asked a question 💭
A MyLymphomaTeam Member

Yes, I think so, I have a high grade b cell lymphoma, but some of my doctors think it evolved from a pre-existing undiagnosed indolent (low grade) b cell lymphoma. The evidence for this is that my… read more

Can You Share An Image, Photo, Video, Or Song That Helps You Connect To Your Feelings?
A MyLymphomaTeam Member asked a question 💭

Music, images, words or even smells - have always helped me connect to my feelings. It can be so powerful.

A picture/image that makes you smile, laugh or cry. One maybe that draws you in though you don't necessarily know why.

A favorite quote.

A song where the music or lyrics speak directly to you?

You can explain the feeling/connection or not, as you wish. The thing is that you share something meaningful to you.

•
View reactions
A MyLymphomaTeam Member

I was diagnosed with Chronic Lymphocytic Lymphoma 4 mo. ago, Oncologist is Not forthcoming with any info so I'm trying to learn about SLL on my own. (And getting 2nd opinion).. Frustrating… read more

I Was Diagnosed With T Cell Lymphoma After A Bone Marrow Biopsy Last Year And Doing The 2x Year Labs. Don't Hear A Lot About This Type.
A MyLymphomaTeam Member asked a question 💭

Actively watching/monitoring stinks. I decided the best way forward was to get my body in the best shape possible. After 23.5 years in the military I know how to prepare for war and under the circumstances this could be life threatening. I am up for the challenge. What do you do to prepare yourselves?

A MyLymphomaTeam Member

When I was diagnosed with Cancer my son was just 6 years old. I just wanted to be alive for the sake of him. I decided to stay strong and fight cancer. I didn't give up. My husband is my real hero… read more

Anybody Else Have Follicular Lymphoma Grade 3B?
A MyLymphomaTeam Member asked a question 💭

I had 6 rounds of Rchop for my follicular grade 3b

•
View reactions
A MyLymphomaTeam Member

I had 8 rounds G-Chop and did not reach remission. Onto 2nd line now with R2.

Wondering Any Advise As To Non-hodgkins High Grade B- Cell Refractory Lymphoma
A MyLymphomaTeam Member asked a question 💭

Starting R-ICE chemo in two wks. Thank you

A MyLymphomaTeam Member

Frances did dr offer CAR-T

Why A Migraine Like Headache Now? It’s Been 9 Days Since My 5th Treatment And Have Had Low Grade Headaches But Now Worse..
A MyLymphomaTeam Member asked a question 💭
•
View reactions
A MyLymphomaTeam Member

Imitrex works great for my migraines but you need a script

I Got Diagnosed With NHL Follicular Lymphoma In 2020 And Under Watch & Wait Since Then Without Any Symptoms And Stayin Very Healthy Now
A MyLymphomaTeam Member asked a question 💭

But recently my cervical, above shoulder and occipital lymph nodes got swollen for the last 30 days without symptoms. Actually I am fit, healthy and hitting my gym regularly. My question is should I stop wait & watch and opt for treatment of Betamustine, Rituximab therapy as my Doctor suggested at the beginning when diagnosed, but he followed wait and watch till any symptoms appear. Can you guide me in this situation.

•
View reactions
A MyLymphomaTeam Member

When I first went to the doctor my lymph node had been enlarged for over a year (or even more 😳) but I still felt good. I was diagnosed with stage 3 (FL) and sent to chemo. So you better see your… read more