June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
Maybe depends on the type or we just unlucky to breath something in the air.
Praying you find a donor soon. 🙏🏼
I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
For some types of blood cancer there's no evidence that early treatment, when you have no symptoms, improves outcomes. Instead, doctors recommend saving treatment for later, when it will have the best… read more
I have read that this condition is rare but I have a biopsy for breast cancer coming up and I also have non hodgkin lymphoma. I am wondering if you can have both at the same time!
Angela
Yes. But mine was just a lymphoma node in my breast
I don’t know yet. But after my recent investigation it was very fast that they wanted to see me again. With my other cancer (brain tumour) I get to see my oncologist on the same day after the MRI. I… read more
I have had no hodgkins lymphoma for over 9 months and receive chemotherapy every three weeks weeks.
So true Pat…Such good words of advice which I will take on board. Xxx
Pet scan lit up for two 4cm x 3cm lymph nodes-SUV 14/16 (does that mean anything?) in lumpy lymphs near kidney and right next to outside of colon tissue -oncologist diagnosed lymphoma today but no type yet, biopsy this week if they can reach them. Pet scan says consistent with active lymphoma. Is biopsy the only true lymphoma diagnosis or can the Pet and MRI alone be enough? Conceded to his diagnosis but started questioning without biopsy. Is biopsy in this case for type only?
If you don’t find someone with same cancer type
You might find people have or are going through similar chemo program and might share the symptoms that arise from this.
Wishing you get answers soon
I’m on this site because my husband has non Hodgkins follicular lymphoma, but now my mom is going to hematologist tomorrow due to some off labs. The labs indicate the need to further explore the possibility of mantle cell lymphoma. Mom is a few days short of being 90. She’s always been strong and active; my rock. Just wanted to see what experience anyone has had. I am totally in the dark about this type of lymphoma.
Thank you for your response Irma, I appreciate you. My mom had her hematology appointment and we are waiting on more test results. What prompted you to get a second opinion? I will also pray for you… read more
Theresa10, that is due to the prednisone. I experienced it when taking prednisone for something else years ago and again on RCHOP.