I was first diagnosed in late 2019. Was treated with rituximab. It came back in 2022 and was treated with rituximab and bendamustine. That treatment only wrapped up a year ago (Feb 2023. ). I’m starting to have symptoms again. Have others experienced rapid reoccurrences? It's just frustrating to think I need I my need to do the chemo dance yet again.
I’m on the same treatment for MZL. Doing 4th treatment mid month.. moving forward is all one can do. Time to consult with oncologist… what are your symptoms… take good care of yourself..
I had a rash that itch like crazy my oncologist gave me a medication by mouth 🙃 and the bumps vanish as well as the itching and rash
I'd love to hear the perspective of others.
I was diagnosed with Diffuse large B cell lymphoma in Feb 2021. I finished R-CHOP chemo by May. In consultation with medical practitioners I somehow came to the conclusion that I would be back to normal within a few months. It has now been just over a year and my fatigue is still very significant. I wondered if there is something else going on with me...so I've arranged with my family doctor to explore and rule out other possible reasons for… read more
RobertM2
Hi! I had low vit D before my diagnosis. I had the high prescription to start with and now I take a regular vit D pill daily (OTC) it did really help. My B12 was low too. Good luck. Kelly… read more
I realized I really didn't answer your question about coloring your hair! I would first check with your physician. I did color my hair just before receiving infusions then waited about 8 to 10 weeks… read more
I'm 53 and was diagnosed last year with stage 4
I have been following IWMF.com since I was first diagnosed. The information they provide is so valuable to understanding WM. Based on this I am traveled to the Dana Farber in Boston to meet with a WM… read more
Hello, what’s the options when the Chemotherapy is not working and DLBCL progresses just 2 weeks after the finished RCHOP treatment?
If you are on private health stay in hospital when you have the treatment. That way you will be totally covered. I was when I had my first round. But I now have moved to public and don't pay anything… read more
Thank you. We had total of 5 Covid Vax and have opted out this year. Had Flu Vax and previously had both pneumonia Vax.
Happy Thanksgiving ❤️
Thanks Donna.
Same but large stage 4 and it was on my neck. What do you mean follicular?