I was diagnosed with CLL/SLL 9/2022 after finding swollen lymph nodes in my neck. Now they are in several parts of my body, and I have a slightly elevated WBC, but have no other "significant" symptoms. I'm on watchful waiting protocol. Has anyone else dealt with increasing lymph node swelling over a fairly short time and received no treatment? Also, could swollen nodes in the throat area affect swallowing? Seems like I have a harder time swallowing my vitamins.

Like many others on… read more

I went to oncology and he gave me copy of biopsy. Does anybody know what it means when it says mature low grade B-cell lymphoma with CD5 co-expression , most consistent with small lymphocytic lymphoma/chronic lymphocytic leukemia

I found out today that I am going to be taking an oral chemo drug that sounds like McCalquien but I didn't want the person to spell it. Does anybody know the exact spelling?

Thanks

Jay Knyal

I don't know what that means. Good or Bad?

Ex. My son is immune suppressed bcs of medication he takes for a rare chronic disease and we are cautious but not overprotective of his environment. I assume it is the same for ppl with NHL watch and wait? Or are there additional precautions against infection, beyond the normal precautions, specifically related to cancer? Thanks

Two plus years of difficulty breathing and multiple Urgent Care/ER Md’s telling me all labs and heart look great! “Btw heres some muscle relaxers.” Monday this past week I hyperventilated in my MDs office. She sent for a stat CT of chest and there are multiple lymph nodes that are “very large”. On tues they did an abdominal CT they had to get special approval because of too much contrast under 24 hours. It came back clear and more labs/ekg, also clear. Worked me into a Pulmonologist Weds and he… read more