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Hi, so glad you are well! How was yours diagnosed? What were your EBV numbers? I wasn't even aware I had EBV, I had antigens, old infection but numbers greater than 600. Lots of infections, swollen… read more
Thanks so much for reaching out. I sure will follow up!
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
Maybe depends on the type or we just unlucky to breath something in the air.
Ceil, I was diagnosed with WM in the fall of 2018. My initial treatment was 6 infusions of Rituximab and Bendamustine. This shrunk my tumor considerably and brought my blood numbers back into line. In… read more
There’s two of them in the back of my left arm that are swollen and have been for a month now not the other I’m just one arm. Just wondering if that sounds consistent lymphoma? And what should I do moving forward to be sure it isn’t cancer?
Same here, left cervical lymph nodes and left armpit lymph nodes swollen for 10 months now, they fluctuate but got really large, did flow cytometry, T-LGL Leukemia a possibility, on to Moffitt for… read more
I'm Glad CAR-T worked for you guys. In my case it did not. When done only one small spot left. 2 months later Pet-Scan Spot got bigger. Now back to square 1.
I was diagnosed with CLL/SLL 9/2022 after finding swollen lymph nodes in my neck. Now they are in several parts of my body, and I have a slightly elevated WBC, but have no other "significant" symptoms. I'm on watchful waiting protocol. Has anyone else dealt with increasing lymph node swelling over a fairly short time and received no treatment? Also, could swollen nodes in the throat area affect swallowing? Seems like I have a harder time swallowing my vitamins.
Like many others on… read more
My swollen lymph nodes was in my right underarm. I was given 13 weeks of radiation, now in remission for 2 years.
T- Cells in node sampling show 84%T-cells:7.2:1 CD-4 /CD-8 Ratio 10.6 % of cells are atypical CD-5 ( bright)/CD-4 positive T-cells lacking CD-3/CD-8/CD/10/CD-16/CD56.
She’s in England and would like to try alternative therapies
I was diagnosed with T-Cell and have been through a lot. 6 rounds of chemo put me in remission and a few months of being in remission, I went through a stem cell transplant with 11 more rounds of… read more
