I have just learned I have double hit non Hodgkin's lymphoma and the doctors are reluctant to change my treatment options because I am over 70. But, I am an otherwise active, lively person and I may want to seek a 2nd opinion.
That's fantastic news. Thanks for sharing and congratulations. I have my 3rd round on March 6 and will have the PET scan after that. I will keep you posted!
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
I had a spinal tap in December because I had brain surgery for a tumour in October but nothing showed up. So hopefully they will continue monitoring it. Nothing fun about a spinal tap.
I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.
I do too Terrie. It’s frustrating I know. Some days I’m more tired than there. Some days I feel nauseas but that’s nerves. I worry. Now I have a UTI where the heck did they come from 🙄.
My uncle has DHL and he just completed his chemotherapy and went to radiotherapy for persisting mass ...he has deauville's score 2 and has complete metabollic response for the initial treatment… read more
I don’t know yet. But after my recent investigation it was very fast that they wanted to see me again. With my other cancer (brain tumour) I get to see my oncologist on the same day after the MRI. I… read more
I would like to know what are the signs and stages of lymphoma.
Thank you. That is very helpful!
I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?
Thank you so much for all your replies. 🌻. Definitely God sent.🙏. Be blessed, be strong💐. Needed to read this, like now🤕. What a coincidence, am at Onco. Clinic waiting to be called, scheduling 8… read more
Two plus years of difficulty breathing and multiple Urgent Care/ER Md’s telling me all labs and heart look great! “Btw heres some muscle relaxers.” Monday this past week I hyperventilated in my MDs office. She sent for a stat CT of chest and there are multiple lymph nodes that are “very large”. On tues they did an abdominal CT they had to get special approval because of too much contrast under 24 hours. It came back clear and more labs/ekg, also clear. Worked me into a Pulmonologist Weds and he… read more
I would certainly say so, I always think the worst part of any diagnosis is the 'not knowing' once you have the information regardless of what it is you can put your mind to it and plan accordingly… read more