June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
I understand it's rare. I have a group on Facebook but looking for others with SMZL.
I have splenic marginal Zone lymphoma and I would like to be part of your group. I don't know how to message you to give you my email though.
Marginal zone B cell NHL ..oncologist recommends that I do last treatment this month also. Can anyone else give me advice on this. Thanks kindly
Magda
They. Know best take whatever they suggesy😂
In july I had a breasttumor of 4-6 cm. I had An operation, pro diagnosi , The tumor is removed. Because a biopsy was non-conclusive for lymphoma. But the tests in the tumor again were non-conclusive. So I had a PEt-CT scan. And they found in my colo-rectal area the same tissue as in my breast. And again the pathological investigation of the biopsy was non-conclusive. Now I am having a second opinion in another hospital( Erasmus MC, Rotterdam) and waiting for results. The second PET-scan, three… read more
Wow, pretty complicated to me but you know that you have to find out what's up ! So sorry you're going thru this but I can relate a little. I was misdiagnosed with CLL for years until finally, I was… read more
I am at stage 4 now. I have received treatment at Penn Medicine. Retuxin and a splenectomy. I have extreme fatigue and confusion. Anyone else in the same cituation?
Bob
Be sure you are wearing a mask when you’re around others to protect your health!
hi all I have splenic marginal lymphoma. I wonder IF that has elevate my migraines to a high level. I now get aura different from before and can’t see with my left eye. I take meds for migraine, but have them too often (twice a day at times)
Thank you all
Please talk with your oncologist
Two years ago, I was diagnosed with Marginal Zone lymphoma. I was told that I have cancer in my bone marrow- about 10-20%- My oncologist put me on the watch and wait as I have no symptoms. Does anyone else have cancer in their bone marrow, and did you receive any treatment (chemo?)
Sue6
Neuropathy, in feet and optic nerves
Also the normal bone pain, fatigue in afternoon
I work really well, get lots accomplished from sun up until around 2 or 3 then that's it.
But have to say… read more
I have read that this condition is rare but I have a biopsy for breast cancer coming up and I also have non hodgkin lymphoma. I am wondering if you can have both at the same time!
Angela
Yes. But mine was just a lymphoma node in my breast