I believe without a doubt that God has guided me through this journey since Sept of 2004. It is my belief that Jesus died for me and that He has placed me in the hands of God fearing Drs and Nurses… read more
Thank you, Valerie.....The more I think about my experience, the more I recall and wanted to share with you.....Although I was very inexperienced with cancer and the process that followed the… read more
That is nice to hear that you’re in remission Good luck and God Bless
At this point, I’ve decided not to start treatment
I have lost two friends in the last year to other types of cancer
They both went through chemotherapy and radiation treatments.
They continued telling me that the chemotherapy had caused many uncomfortable side effects and weren’t sure whether it was causing more painful issues than it was worth.
They both have passed in the last three months.
They both expressed to me that their quality of life, and getting some extra months, wasn’t really… read more
I’ve got a question, I’ve got cancer, so much has changed with me. There are times I feel like someone else has taken over my body. I guess what I’m trying to say is that it’s hard having cancer and it’s not just me going through this. My whole life has changed, I can’t travel very far, it’s hard on me. It’s hard enough having cancer, I don’t even go outside anymore unless going to appointments, letting the dog out. My daughter keeps pushing me to come there and there is colorado. Lived in… read more
I can relate with everyone on here that has made a comment about what their life is like. Maybe everyone that has cancer should start their own community to live in so we can support each other ❤️ You… read more
Hello Group - My name is Pam, 63 year old retired nurse. I just finished 6 months of Bendemustine/Rituxamab (BR) treatment for follicular lymphoma stage 4. The majority of providers are recommending a 2 year - every 2 month infusion of Rituxamab. I've also heard some LLS physicians state they no longer use this protocol due to weakening of the immune system - with COVID and all still active would increase our chances of getting it. Anyone have advise/opinion on this? I personally don't feel… read more
I'm 45yrs old & was diagnosed with SMZL a couple weeks ago. My partner & I have an appointment with my Dr on 1/9 to discuss next steps, etc. We have decided to not tell our children (16yr old twins, 14 & 11) until after meeting with the doctor. I'm sure they will have a ton of questions I just don't have the answers to yet. Plus, I didn't want it to affect their holidays. We have also not told any family for the same reason. I have only told two of my best friends.
Any advice on how to share… read more
I found that it helped me to get over my initial terror before I started sharing it. It's challenging enough to deal with my own reactions first before dealing with others reactions on top of that. It… read more
I didn't see it listed as one of the "lymphomas". I was diagnosed February 20, 2019. I had chemo and was told in October that I was in remission.
Hi I was diagnosed with diffuse large b cell double hit and stage 4 in March 2023. Went into remission in October after their 6 chemo treatments of rchop. Got to do most of the infusion (24 hrs at a… read more
After the news that you are in remission, did you go back to the normal things in life? Traveling, flying, cruises and etc? We are still wondering if we should be cautious?
Yes, and 80 going strong . Good luck
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.