June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
At this point, I’ve decided not to start treatment
I have lost two friends in the last year to other types of cancer
They both went through chemotherapy and radiation treatments.
They continued telling me that the chemotherapy had caused many uncomfortable side effects and weren’t sure whether it was causing more painful issues than it was worth.
They both have passed in the last three months.
They both expressed to me that their quality of life, and getting some extra months, wasn’t really… read more
I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
For some types of blood cancer there's no evidence that early treatment, when you have no symptoms, improves outcomes. Instead, doctors recommend saving treatment for later, when it will have the best… read more
I went to oncology and he gave me copy of biopsy. Does anybody know what it means when it says mature low grade B-cell lymphoma with CD5 co-expression , most consistent with small lymphocytic lymphoma/chronic lymphocytic leukemia
Wanda, I was originally diagnosed with what was called an indolent NHL. or lymphoplasmacitic lymphoma. One valuable resource I used to educate myself was the International Waldenstrom's… read more
I don’t know yet. But after my recent investigation it was very fast that they wanted to see me again. With my other cancer (brain tumour) I get to see my oncologist on the same day after the MRI. I… read more
Sorry that you have such a full plate. I hope you take some time to rest and relax if you can.
I am 61 years, no symptoms, on watchful period, I have swollen lymph nodes in abdomen and neck all my blood reports are normal.
Hello
In general following the health my food guide and reduce sugar. Here is an article. https://www.mylymphomateam.com/resources/diet-a...
Maybe depends on the type or we just unlucky to breath something in the air.
I had my biopsy results which were taken from my groin . The result was that they wanted to do a FISH test to see what subtype it could be . I already have follicular lymphoma and within the past week have had bad heartburn and the last couple of days or so my abdomenal area feels really sore and very uncomfortable 😣 Are there any concerns regards this ? I have another review on Monday and would guess that I will get the results from FISH however would like a heads up from anyone who may have an… read more
Please be sure to talk to your oncologist about these concerns.