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Hi, so glad you are well! How was yours diagnosed? What were your EBV numbers? I wasn't even aware I had EBV, I had antigens, old infection but numbers greater than 600. Lots of infections, swollen… read more
KiaraBowling
Hi! Welcome to the site. Everyone on here is so kind, supportive and helpful. I have/had DLBCL and had treatments of RCHOP chemo. I've been in remission for 3 years. I hope you have… read more
Maybe depends on the type or we just unlucky to breath something in the air.
Were these conditions related to the Rituximab ..I’ve heard of good outcomes and long remissions after Rituximab…hope you get well..
I am about to begin treatment for Peripheral T-cell Lymphoma (PTLC), stage 3. The plan is Adcetris (Brentuximab) and CAP. Has anyone has this? I understand that Adcetris is fairly new for first time lymphoma so my oncologist couldn't give me survival rates. I had colon cancer 12 years ago so I have some familiarity with chemo but, of course, every chem is different and I don't know how sick this will make me.
I just completed 8 sessions of CHOP therapy for PTCL-NOS. The survival rates weren't great but when my oncologist proposed it in November of last year, he described it as the standard of care for my… read more
My oncology office made me go through chemo training before starting chemo. I was advised of all of the possible reactions.
My Epstein Barr numbers were off the charts but not a current activation.. just reactivated recently. I have not been diagnosed yet with lymphoma however I have many of the symptoms. Daytime sweating more so than the common night sweats but drenching. I’ve also been getting recurrent sores behind my ears! They are similar to cysts.. get big, then go down. Then a couple weeks later they are back! I also have one (only one) lymph node in the groin that popped up but never back down. It’s been… read more
Yes, diagnosed 10/14/22. I have been in a clinical trial at MSKCC since then.
I am one year lymphoma free in June I have been doing great but now I might have it it my brain Tests are coming.
For everyone that made it through to remission from lymphoma in the brain or spinal area I am soooo happy for you! For those who are still struggling be sure that either you or your advocate ask… read more
Has anyone had 6 cycles of mini RChop? I was just diagnosed with DBCL, (also have MZL)..just had my first treatment , did very well. Did you go in remission?
I had stage 4 DLBCL (Difuse large B Cell Lymphoma) I did 6 cycles of RCHOP and have been in remission for 2 years. I have not heard of mini cycles. I wish you well and pray that the mini cycles work… read more
