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Any thoughts on whether those of us with lymphoma should get the shingles vaccine? My oncologist today told me I should get it. I've been pretty die-hard about not introducing toxins into my body....and I'm thinking that is another one. But he said getting shingles would really be hard on my body with the lymphoma.
Rebecca
Thanks I’m going to ask my oncologist when I go in next week.
I was first diagnosed in late 2019. Was treated with rituximab. It came back in 2022 and was treated with rituximab and bendamustine. That treatment only wrapped up a year ago (Feb 2023. ). I’m starting to have symptoms again. Have others experienced rapid reoccurrences? It's just frustrating to think I need I my need to do the chemo dance yet again.
I’m on the same treatment for MZL. Doing 4th treatment mid month.. moving forward is all one can do. Time to consult with oncologist… what are your symptoms… take good care of yourself..
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
For some types of blood cancer there's no evidence that early treatment, when you have no symptoms, improves outcomes. Instead, doctors recommend saving treatment for later, when it will have the best… read more
Opinions or no opinions from politicians. These vaccines, not like others, that have years of testing to make sure they're safe. Would raise a eyebrow? They had only been tested on rats, which most… read more
Hello Group - My name is Pam, 63 year old retired nurse. I just finished 6 months of Bendemustine/Rituxamab (BR) treatment for follicular lymphoma stage 4. The majority of providers are recommending a 2 year - every 2 month infusion of Rituxamab. I've also heard some LLS physicians state they no longer use this protocol due to weakening of the immune system - with COVID and all still active would increase our chances of getting it. Anyone have advise/opinion on this? I personally don't feel… read more
Has anyone with NHL had a terrible time with side effects of the booster? I got mine on Sunday and have had a terrible reaction! So weak sick, tired the works!????
Denise I feel the same -- that there is a connection. I believe the vaccines can "pull the trigger," on something brewing in the body such as cancer, autoimmune disease, etc. I know 5 people diagnosed… read more
Is the risk the same as if I was still receiving treatment or will my risk be similar to other people in the population?
