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June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
I have read that this condition is rare but I have a biopsy for breast cancer coming up and I also have non hodgkin lymphoma. I am wondering if you can have both at the same time!
Angela
Yes. But mine was just a lymphoma node in my breast
I am in remission now. Live on Vancouver Island in BC
I think this should be investigated further.
Maybe depends on the type or we just unlucky to breath something in the air.
I was diagnosed with Follicular Non Hudgkin's Lymphoma last year in November. Had 4 Month Chemo with Bendeka. Now in remission, and was recommended to do a 2 year maintenance treatment with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]. Anybody else has the same treatment? Is it standard to do it after chemo? What are the long term side effects? I feel fine, but still worry about this
Anybody completed the 2 year? Was any recurrence of the cancer shortly after finishing treatment.… read more
I tried the maintenance once and mine recurred while on it. I do much better just getting a round of rituxan when it recurs.
I don’t know yet. But after my recent investigation it was very fast that they wanted to see me again. With my other cancer (brain tumour) I get to see my oncologist on the same day after the MRI. I… read more
I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
For some types of blood cancer there's no evidence that early treatment, when you have no symptoms, improves outcomes. Instead, doctors recommend saving treatment for later, when it will have the best… read more
Any thoughts on whether those of us with lymphoma should get the shingles vaccine? My oncologist today told me I should get it. I've been pretty die-hard about not introducing toxins into my body....and I'm thinking that is another one. But he said getting shingles would really be hard on my body with the lymphoma.
Rebecca
Thanks I’m going to ask my oncologist when I go in next week.
I have read some history posts here and on the internet about how having CA (including Lymphoma) increases the likelihood of getting other CAs. This is with or without getting chemo- or immuno- therapy txs. I know that after my dx, my mammogram came back abnormal with areas that needed to be biopsied and watched. There are more of those areas every 6-month check. My skin CA occurrences which started about 6 years prior to dx have ramped up this last year - with 4 new spots that needed to… read more
I have been thinking about this issue. I finished R-CHOP for follicular lymphoma in January 2023. Since then I have had squamous cell carcinoma on my scalp and am currently scheduling a biopsy for… read more
My check up yesterday, I knew would be with assistant, I met 1 time prior and tried not to make judgment. Yesterday I asked pointed questions! I couldn't get an answer!!!! Agh! I asked "what is the name of my leukemia?" She's scanning my chart online... ummm I don't know, it doesn't say. Wow I say. The initial blood work said CD5 small B cell leukemia. She then says "yeah, yeah it says that". Then I asked "Is that the name then?" She said "Um I don't know" I said OK then what's the name of… read more
Thank you
