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Opinions or no opinions from politicians. These vaccines, not like others, that have years of testing to make sure they're safe. Would raise a eyebrow? They had only been tested on rats, which most… read more
I have been told not to get the covid vaccination while getting my Chemo treatment. Anyone getting the same instructions? What happens if I do take it?
I checked with my oncologist before I had my vaccine and he said to go ahead and have it. I had both shots with no side effects. I was on CHEMO at the time. You sure don’t want to catch COVID.
Has anyone with NHL had a terrible time with side effects of the booster? I got mine on Sunday and have had a terrible reaction! So weak sick, tired the works!????
Denise I feel the same -- that there is a connection. I believe the vaccines can "pull the trigger," on something brewing in the body such as cancer, autoimmune disease, etc. I know 5 people diagnosed… read more
I was first diagnosed in late 2019. Was treated with rituximab. It came back in 2022 and was treated with rituximab and bendamustine. That treatment only wrapped up a year ago (Feb 2023. ). I’m starting to have symptoms again. Have others experienced rapid reoccurrences? It's just frustrating to think I need I my need to do the chemo dance yet again.
I’m on the same treatment for MZL. Doing 4th treatment mid month.. moving forward is all one can do. Time to consult with oncologist… what are your symptoms… take good care of yourself..
Let the sunshine in!!
No. I don’t believe my cancer or anyone else’s was Covid vaccine related. I was diagnosed with NHL / DLBCL in August 2021. I had already had 2 COVID vaccines earlier that same year. My oncologist… read more
I know that night sweats, fatigue, and itching can be related but Drs don't seem to know why and don't really offer any treatment or explanation other than if the "B" symptoms get bad enough or the disease seems to be progressing as evidenced by your routine CT and/or bloodwork - then it is typically time to bring on the Chemo or Immuno therapies. My Drs don't even document these things when I report them now. I am on my 2nd serious sinus infection this year. Anybody else?
My oncologist says the usual procedure after completing the final round of chemo/immuno therapy (which I did yesterday, hurray! ) was to continue with immuno therapy infusions every 2 months for 2 years. He also said the immune system would get compromised by the therapy and that it was my decision, esp. with Covid and other (respiratory) diseases still around, if I really wanted to go through with it.
He didn't specify (and I forgot to ask) just how MUCH it will suffer and how careful I will… read more
Anyone been through this before? I’ve heard even testing the spleen cells can be inconclusive. What gives in this situation?
Many thanks Gene, you answered all the questions I had.
Ex. My son is immune suppressed bcs of medication he takes for a rare chronic disease and we are cautious but not overprotective of his environment. I assume it is the same for ppl with NHL watch and wait? Or are there additional precautions against infection, beyond the normal precautions, specifically related to cancer? Thanks
I find the watch and wait so hard. For me is like playing with a loaded gun, the problem is that you do not know really what the caliber is going to be. I just finished treatment for a FL Grade 2… read more
