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June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
I have read that this condition is rare but I have a biopsy for breast cancer coming up and I also have non hodgkin lymphoma. I am wondering if you can have both at the same time!
Angela
Yes. But mine was just a lymphoma node in my breast
Hello everybody. I am 45 years old and I am diagnosed non Hodgkin Lymphoma (B cells, nodular marginal zone lymphona), 1st stage and I have had 15 radiotherapy treatment. In internet I can't find… read more
I have been diagnosed with marginal zone lymphoma, non Hodgkin's. I currently diagnose with anemia. Extensive test done and no bleeding found. Could lymphoma be the reason?
Ruthann..Thank you for your reply
After many months of blood infusion off and on..Currently doing great! Only taking an iron supplement now 3 times a week which seems to hold off the anemia so… read more
I understand it's rare. I have a group on Facebook but looking for others with SMZL.
I have splenic marginal Zone lymphoma and I would like to be part of your group. I don't know how to message you to give you my email though.
I am in remission from DLBCL. I was treated with Rituxin infusion every 21 days for 6 cycles. Also I took imbruvica and Revlimid orally. I am 88 y/o . Anyone else have similar TX?
Thank you for your reply. This is good to know. I’ve already stopped driving. I’m 90 and have marginal zone b lymphoma. I had an allergic reaction to my first trial infusion of rituxibam but now… read more
Would like to contact others with this lymphoma
Hi there. My brother has NODAL MARGINAL ZONE LYMPHOMA and he just finished his chemotherapy. He was diagnosed in September 2020. We're actually still in the learning process of all of this!
Two years ago, I was diagnosed with Marginal Zone lymphoma. I was told that I have cancer in my bone marrow- about 10-20%- My oncologist put me on the watch and wait as I have no symptoms. Does anyone else have cancer in their bone marrow, and did you receive any treatment (chemo?)
Sue6
Neuropathy, in feet and optic nerves
Also the normal bone pain, fatigue in afternoon
I work really well, get lots accomplished from sun up until around 2 or 3 then that's it.
But have to say… read more
I am a 63 year old woman. I have a marginal b-cell lymphoma and have had 3 out of 6 chemo treatments.My kidneys were under attack so I had to suddenly get on chemo. They are doing much better now. I also have lupus and and sjorgrens disease. I have had soo many problems after doing chemo and rituxin,that I am so scared to continue.I have neuropathy in my feet, just got bells palsy on the right side of my face,could not move for a few days due to an attack on muscles,joints,etc.The pain was… read more
Hi Merri
I am so sorry you are feeling so awful…. I was diagnosed with marginal zone lymphoma at 62
I am now 69 and doing well.
I did have 2 treatments during these 7 years. First, just Rutuxin and… read more
